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Why do doctors do this?

Jan 24, 2016 6:22 AM

Why do doctors tell you more sleep would be "so helpful", when the reason you can't sleep is pain, but they don't do anything to help get rid of the pain so you can sleep. I know more sleep would be helpful, trust me I'd LOVE more sleep, but I can't sleep because I hurt too much!

Jan 24, 2016 7:03 AM

Same here Clizzyb! It's so frustrating having your pain wake you up every 10 minutes when you just want a good nights rest like most people! I smoke medical marijuana and take muscle relaxers before bed so I'll at least get an hour of sleep before being woken up by my CRPS. I'm hoping after putting in my new spinal cord stimulator this year I'll be able to sleep more with it on but I know it takes a while to get used to the stimulation. I hope you find some better coping mechanisms to help you sleep with your pain!

Jan 24, 2016 8:52 AM

It's extremely frustrating to say the least. I get maybe a couple of hours a night but broken up and I wake a lot from pain. Then I will go through spurts of not sleeping at all for 3-4 days at a time. Then exhaustion takes over and I'll sleep maybe 3 hours and wake up. If I had to work, I'd be a zombie!! If I am dozing in the daytime, I don't fight it because then I get a second wind and can't fall asleep at all. Usually I fall asleep at about 5am and then I'm up by 7. It sucks!! Sleep really would be helpful and gratefully accepted.. {{{{Hugs}}}} πŸ’•πŸ™πŸ»πŸŒ»

Jan 24, 2016 11:39 AM

I think its because anything they could prescribe would be addictive, but I also think at a certain point who cares if it is as long as its working.

I woke up several times last night due to the pain in my upper body.

I have barely any mobility in my elbows right now and my shoulders are killing me.

Jan 25, 2016 8:04 AM

Even though I fall asleep easier with my antidepressant, I still have broken sleep due to waking from pain. Last night was miserable though because of a migraine that would not let up. I finally slept from exhaustion about 2 hours, but the headache is still present. Doctors don't understand pain induced insomnia unless they suffer it too. πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 25, 2016 10:14 AM

Flappsy, sending you {{{Hugs}}} and prayers that your migraine subsides and you have a peaceful and less painful Monday.πŸ’•πŸ™πŸ»πŸŒ»

Jan 25, 2016 11:23 AM

I have a prescription for sleep medication, however I can't pay for the brand name and the genetic doesn't work. Such is life, I guess!

Jan 26, 2016 1:51 PM

I woke up in so much pain today I actually vomitted!

Jan 26, 2016 1:56 PM

Where are you from Donatello and what is the medication?

Jan 26, 2016 2:47 PM

Clizzyb, I'm so sorry. That happens to me as well. Sending you {{{Hugs}}} and prayers for a better day. πŸ’•πŸ™πŸ»πŸ˜Š

Jan 26, 2016 5:19 PM

Clizzyb, if your doctors could take away your pain, they would certainly do it. Don't expect too much. This is a difficult topic and again its all about the individual case. Approach with trial and error, what helps, what doesn't, what are the causes and patterns? Find out as much as you can. Have you used the diary? By the way, there is new research showing pain reducing effects of melatonin (3mg daily in evenings) if used for 4 weeks at least.

Jan 26, 2016 6:25 PM

Clizzyb, I rely that way on Sunday, before and after the headache turned to a migraine. I'm so sorry you hurt so badly. I hope you feel better soon. Until then rest and take it easy. Hugs!! πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 26, 2016 7:13 PM

Because they don't know how you feel so he say anything thinking he saying the right things to you they just study pain they don't know how it feels

Jan 26, 2016 9:59 PM

I think it's really ironic. I got better meds, and Boom! I could sleep for 7 hours a few nights a week, compared with two to four hours sleep per week.

I once got pretty sick (for knocked me out for a month), and went to Urgent care twice. The first doc told me to get more sleep, and add a decongestant. Didn't work. A week later, a different doc told me about how tonic water can be used to treat dehydration (a big problem for me) and added another med. He was actually familiar with chronic pain, having people in his family with different diseases, including CRPS. CompasiΓ³n and his willingness to try to solve the problem made me trust him, and then I finally got better...I think one thing is the attitude "here take this, it will help. Oops, never mind. It just started working but it has side effects."

I get that some side effects are serious, but if I go in and just say "I think this med is helping" the docs seem worried, even if it's just gabapentin. So now I try to do pros and cons, staring with problems and questions. I usually learn a lot more about my meds that way too.

Jan 27, 2016 10:34 PM

I'm sorry, sad but true I was told to learn to live with it, and so I did.
I'm sad to see no one mentioning things like teas and ointment. .
Bath salts ect...
Would you like more info.
I'll make a posting ...
You can go to places like GNC and ask for valerian root also I'm sure you've heard of aromatherapy lavender and chamomile always works whether it's in the bath you can get bath salts already made up the tea also very nice before bed it may take a few days to start working but it's a good way to start, the doctors that told me to learn to live with it I have to bless them and thank them otherwise as they said I would be on kidney dialysis or strung out and be put on methadone by now. That's something we all have to keep in mind which we have the immediate needs but we also have to think about quality of life will have in the future or not hang in there you're not alone

Jan 28, 2016 1:39 AM

Some of us have conditions that herbaltherapy would worsen. Most herbalists would deny that. But when you have a condition that won't properly absorb calcium and vitamin d, (over and not under absorption), thank you I'll leave it alone. Too many want to FORCE these things on me and it really ticks me off. I don't see an R.N. or M.D. or anything else behind their names that show me they know about sarcoidosis, especially the 5 percent who have it spread to three organ groups. Sarcoidosis is called an orphan disease for a reason. We won't even go into all the other medical issues right here.You probably won't see me discuss holistic or herbal medicine because of that and it's a real shame because I think some really truly help.

As with everything, there has to be a reasoned approached. There are far too many, however that I ran into who want to FORCE things on me that I know will kill me. Then they get 😠 when I say πŸ‘Ž. Pardon me, this is my life and body. Go get all my diseases and practice on yourself. Then you won't be forcing it on me anymore. I have initials behind my name but they're not medical. It sure won't cure anyone.

I don't mean to sound rude here, but I've been dealt very rudely with when I simply say I'm not interested. Then they want to know your whole medical history, as if they could understand it and then get nasty.

Thank you, I'll live out the short remainder of my life on meds I know have side effects, but that I can more afford. These drugs are killing me but I know it. After analyzing them, could probably figure out which is the most dangerous. That's different with most herbal medicines in that they have varying amounts of chemical in them. Get this, the person who hammered me the most is supposed to be an herbalist and denies herbs have any chemicals. I then changed and said they have non-toxic chemicals and her response was no chemicals at all. I rest my case.

There are some herbs that work on some well on some medical conditions. They don't work on mine. I'm glad they work on yours and that you found someone sane to tell you what you need. Hope you keep healing. I have another friend who used massive amounts if DSMO and just underwent surgery to remove two massive ovarian tumors. One was 10" x10" x10". She took the massive amounts to treat her often recurring bronchitis. She is on chemo and had blood clots in both legs and the lungs. She didn't like doctors and didn't want to sign up for the affordable care act, (Obama care) cause she and her husband had been lied to, like most Americans that it's extremely expensive. Well, this program took her and her pre-existing condition with a once yearly $500 deduction, best plan offered, for $300 a month. She could have died, and may still do so because of the bigotry and lies told about that health plan. How many people have died and how many more will because of hatred, politics and lies?

Last topic here, Georgia is taking away Medicaid for those on SSI, when a person used to be guaranteed coverage. So now other states have expanded Medicaid without going bankrupt and Georgia is now offering spend down programs for its poorest disabled citizens instead of Medicaid. Wonder who will get Medicaid now? I'll get off my soapbox now. I just see so much hypocrisy and people dying because of it. It's just plain wrong.

Jan 28, 2016 2:11 AM

By all means I am not trying to push anything on any one... we're talking about for those it does help... as an option when you can't get RX, I have been a chronic pain patient sents 91 so I have tried just about everything out there.. I'm also a survivor of 3 cancers all done holistically. .
1 breast
2 abdominal tumor
3 bladder... this was a big eye opening as the herb that heald this also heals skin cancer.. ever hear of the old black salve. I'm a pill form... ..
I also used RX organic cannabis

Again let me state for those who find herbs a problem. . Sad as all RX come from original herb healers just altered by man in one way or another then burned as witches. . Any way .. alternative ways .. don't work for every one.... so if it doesn't don't get upset about the info going out please

Jan 28, 2016 5:46 AM

I'm not upset about the information going out. I agreed that it may work for some, but that it might be deadly for others. I gave you two examples where it could be deadly and how some wanted to ram it down my throat even though they don't even acknowledge that herbs are chemicals. My close friend almost died this year because of the, and I'll repeat it again, MASSIVE doses of DMSO. She's left with cancer and blood clots in both legs and lungs. The former friend who told me she could cure my disease and even cancer, who did not acknowledge their chemical basis, pushed and pushed and pushed until I had to put distance before and I.

I don't see that unreasonable and outrageous use here on this board. It was merely a cautionary tale. Hope I didn't offend anyone because I strongly believe there is a need for reasonable and knowledgeable uses of herbs.

Jan 28, 2016 9:20 AM

Donamel, I don't think you offended anyone. (I can only speak for myself in reality so, no, I'm not offended). I have been trying everything available to to help with my pain. They have legalized medical marijuana here in NY but my pain management doctors office is not going to get certified any time soon. I haven't smoked since I was in my 20's and I'm 50 now. Back then, I smoked to get high, I don't want that now.. I just want pain relief and don't even know if it will work for me. Guess I'll have to wait. I do go each and every year for a physical, blood work, urinalysis, chest X-rays, breathing tests, etc. to make sure my body isn't suffering adverse effects from the meds. I've been on medication the better part of 18 years and I'm not "strung out" or on Methadone. (They gave me Methadone for pain relief at one time and was on 120mg a day and it didn't touch my pain). I do use a combination of meds and natural remedies. I know that whatever works for you is whatever works.. To each his own. Nobody is here to judge anyone. We're here to help each other and give each other an ear or a shoulder and advice when asked for. Sending {{{Hugs}}} and prayer that everyone is having a peaceful and light pain Thursday.πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Jan 28, 2016 10:39 AM

I'm not offended by anyone's post. And I hope no one is offended by mine.

Donamel, I'm really very sorry about your friend. I hope and pray she will be ok. It's awful when we do something to help ourselves, and it creates worse problems. I personally think anything, whether medicinal or herbal can potentially cause problems. Even surgical treatments can later cause complications and further problems.

I'm a prime example of that. They did a hysterectomy and all my other organs adhered together with endometreosis & scar tissue. That was unknown until they took out my ovaries due to ovarian cysts they suspected was cancer, because they kept growing. Then 7 years later a huge tumor (benign) was removed, and again they had to clean out endometreosis & scar tissue, but caused damage to my bladder in the procedure. Two years later I had surgery for pelvic congestion syndrome (PCS), embolized 11 engorged pelvic veins that was causing severe abdominal and leg pain. Last year I developed vein reflux in my legs, due to the PCS. I could get angry at the doctors for not explaining all the potential delayed complications. But I was the one who agreed to have the procedures, without asking about possible complications. Getting angry at the doctors will only stress me out, and blaming myself would do no good either. And all of this is just a drop in the bucket for medical problems that have jumped on board since.

But each of us are individuals, with different issues. Donamel mentioned the vitamin absorption issue, over-absorption. I have a genetic defect (MTHFR gene) that prevents me from absorbing and metabolizing B Vitamins, especially folate. I have another defect that causes over-absorption & metabolizing of benzodiazepine meds. And I have a doctor who wants me to keep increasing my magnesium until I'm going to the bathroom daily (IBS-C). But I know there's a risk as "too much of anything is not necessarily good." So I'm sitting on the fence of contemplation on this doc's suggestion.

No one can see the future, or we all may not be where we are today. We all take risks just by taking meds or herbs. I hunk each of us truly know our bodies and health better than most of our doctors. Several of mine don't even understand Sjogrens, and I'm educating myself to be able to educate them. We just have to try and have faith that the decisions we choose are the best ones for us. We all offer suggestions, but only each of us knows if the suggestions are good for ourselves or not. I don't think any one method is better than any other method. It's all depends on our individual medical needs. But that's what's great about our community, being able to openly share our stories & offer suggestions without judgement.

I didn't know anything about (Donamel's) sarcoidosis until posted something, and I asked a question about it. I thank you for enlightening me where I could understand what you have. I've learned so much from others here, about many diffrerent diagnoses, i didn't even know existed.

I actually feel lucky that I don't have what many go through. And I feel bad what others go through. I realize every day I could be much worse off. But I've learned so much from everyone else on here, that it redefines the meaning of the statement, "it could be much worse.". I hate this site and others like it are necessary. But I'm also very glad to know others understand the chronic pain fight, are able to make suggestions, and we all have each other for support. Hugs, love, & prayers for everyone to have a good day! πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 28, 2016 1:42 PM

As I felt before I ever began texting on this site, these are well thought out people. Otherwise I wouldn't have felt safe venturing out. It's just that my friend hurt herself so badly and I'm really shook up behind it. She is so close and tried to get her attention the last several years. The other one had a daughter with recurrent type three breast cancer that she thought she could cure. By the time it resurfaced, it was stage 4. This is the one who believes that herbs do not have chemicals. We all need help and we all need prayer and each other. I love you guys so much. You are so precious.

Jan 28, 2016 7:00 PM

You are so right Donamel. I'm sure you feel at a loss & frustrated of how to help your friends. I know I would. I remember when my best friend had an aneurysm burst and nearly died; I didn't know what to say, so I was just available. We're here for each other, because many close to us do not understand chronic pain, and even the emotional pain we go through. We need each other's wisdom. At least I do, with the fibro fog and memory loss/dementia issues. Lol 😚. Hugs, love, & prayers to you and everyone! Sweet dreams! πŸ™‚πŸ™πŸŒΌπŸ’•πŸ˜΄

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