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Wide awake anxious and excited.

Jan 10, 2016 2:52 AM

I've been awake since about 3 pm yesterday. I get to go home monday!!!!!!!! I'm so excited to get into my own bed. But at the same time I'm nervous as hell. I still can't eat so i have a feeding tube. I'm going to have a home nurse (is that what they are called) to help with it though. Plus a nice new wheel chair. I'm kind of disappointed though because no doctor has been able to lower my pain. It still seems to get worse Every day. But Im more than happy to be going home
I can't even remember how long since I've been home but its been months.
Wish me luck.

Jan 10, 2016 3:00 AM

Good luck. What happened? Did you have an injury? I am always blown away reading about people's conditions sometimes I feel sorry for myself then bam! It's put into perspective.

Jan 10, 2016 3:03 AM

Honestly. Its a long story lol. But basically I have CRPS and it spread to my.stomach which caused me to not be able.to.eat my pain is untreatable now i guess. I was put into a coma twice to.try to reset my brai. But it didmr.work.I had to go to a mayo clinic out of state from wheere I live and they are finally. Letrimf me go.home.:)

Jan 10, 2016 3:06 AM

Far out! Man that's a pretty rough hand. Good on you for celebrating the little victories:-)

Jan 10, 2016 3:07 AM

Happy for you going home.

Jan 10, 2016 3:24 AM

I'm so happy you're going home soon Jenna! I wish you would've gotten some pain relief after all the crud you've had to go through in the past couple months. I'm so tired of enduring this crappy disease and watching other amazing people go through it too. Hopefully you can be more comfortable at home 😃

Jan 10, 2016 9:33 AM

Hey..Jenna I'm so happy your heading home. That will make u feel better in its self. As far as all the other just see it as a means to an end. You want to end up with an awesome life. So for now u have to heal up from all your body has been through. The home care is awesome. That is gonna be peace of mind. And for your pain. Remember our lives are gonna be different so try your meditation and relaxation techniques. Are they also sending u home with physical therapy? If not u may want ask for it. Until then just be happy with you going home that's the first step.

Jan 10, 2016 9:53 AM

Oh Jenna!!! I am so very excited for you!! I am so happy to hear that you are going home to your own bed to be with your family. You are such an inspiration. You, my dear, are a very special part of this pain family. You've been in everyone's prayers around the clock while you were in the coma and have continued to be since you've been awake. I think that going home is going to help you in ways that may not be evident at the moment. You'll be in YOUR home, in your own bed without the stress of doctors and nurses coming in and out at all hours and poking and prodding. It will be a tremendous amount of stress taken away from you. My heart is so full of joy right now that I can't explain it. I wish I could put my arms around you and give you the biggest (but gentle) hug!! Know that we have all grown to love you and that you are very much a part of us. Always remember that if you're feeling down or if you need to chat, we are just a keystroke away!! Day or night, no matter the time you can call on me, Jenna. If you want put my number into your shiny new phone (YAY!!) and you can text or call me any time. My number is 1(516)946-5586. My email is Ladygirl94@aol.com and you can use all of the above any time you want or need to. Have a safe trip home and know I'll be praying for you. Don't worry, the home nurse will take good care of you and soon you'll be back to eating like you used to. Sending you lots of love, giant, gentle {{Hugs}} and all the best that this new year has to offer. 💕🙏🏻🌻

Jan 10, 2016 11:42 AM

Jenna I so happy to hear that you are going home! Just know that I will be praying for you and that maybe with being at home maybe the pain will ease some. Sometimes stress can induce a flair. Prayers for you and your family and a safe trip home for you all! Home nurses are the best, I've had one for my Aunt several times before for my Aunt, and they are amazing people who care. Love and prayers to you and your family!

Jan 10, 2016 12:12 PM

Praise God! I'm so happy for you Jenna!!!

Jan 10, 2016 6:30 PM

Jenna, this is wonderful news! 🎉 I know you'll feel better just being out of the hospital. Maybe once you are able to start eating your stomach pain will decrease and then the other pain will follow. I don't know much about CRPS but in my way of thinking, the inflammation to your stomach is probably causing pain to be worse. When my IBS-C flares up I hurt from my throat to my pelvis, even around into my back. You will be in my prayers & I will not stop paying for pain relief! Big gentle (((hugs)))), and prayers for a safe trip home. 😷🙏🌼

Jan 11, 2016 3:37 AM

Bless you Jenna. I hope you have a safe trip home. I am so glad to see you posting after all this time. And bless the chronic pain family for their prayer chain and well-wishes to you. That was awesome how the community came together to support you while you were in the coma. 💐

Jan 11, 2016 3:42 AM

Thank you all for the prayers and wishing me luck on my way home. I'm still wide awake at 3 am lol. I leave at 10 am so only 7 more hours haha

Jan 11, 2016 3:54 AM

Hang in there girl! What a rough ride for you. I have been throwing myself a pity party and then I read about your pain. I am sending hopeful wishes for you. Hoping your home nurse can help you through the awful pain.

Jan 11, 2016 3:59 AM

Jenna, I am happy you get to go home. I sure it is exciting. There is nothing like being at home when you have been away from it for a while. I hope the Mayo clinic was able to offer you treatments that other places were not able to so when you go home your local doctors can take over and consult with them. Then you would just have to go by every now and then. I don't know how far away you are but I hope it is not too far away from them. Take care Jenna and best wishes.

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