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Will it Ever Get Better?

Apr 30, 2015 11:05 AM

Things have been truly rough. I am at my wits end. Sometimes I feel like giving up and just let whatever happen, happen. But I am truly scared to let that happen. I am still having problems with tapeworms. I gentlemen in out group was right when he said the one I showed was not a tapeworm but I don't know what that was. It looked like some kind of worm. It hurt really bad when it came through my sinuses. My ears plugged bad that I thought I was going to have vertigo.

Things have gotten so much worse. Except for my wife, most of my family, extended to said that I really need to consider being delusional. It took a whle but I finially got the evidence together to show my wife and she really believes me no. I don't have a cold, but I am coughing up straight lines that have striations on them that look like worms. But we magnified, and we say little worms coming out of it swiggling around. I had these lumps all over my stomach and and my chest and they were like the size of candy corn. I rubbed them to see what would happen and they all when in. I had to go to the emergency room because my intestines turned hard as a rock and it felt like something was going to burst out of where my liver is located. They said I was severly constipated. But my intestines turned soft the next day and I was quite the opposite. But I put out quite a bit of worms. I even have them subcutaneously in my face. I have what looks like an open red sore. It won't heal but I put a flashlight up to my face and there is like a design in my face. i take the light away and a few minutes it disappears.

So so far I have it in my arm in the muscle. That is where the reproduce. I can feel the embryospere, which is a round circle ablout one and a half inches wide and feels like a worm but is not a worm. And then there is a space called and oncospore and then there is a sack that has the baby worms in it with their hooks. Tapeworms have hooks too. This process is like an 8 on the pain scale in my right arm. I described that to my doctor and then just learned about it the other day on the cbc website. But they don't find it interesting that I described it to them before I knew what it was. The part they can't get by and I do understand a little bit is that my esosinophils of my white blood cells are not elevated. That is the part that recognises something foreign or an allergy. But I had the idea that if I had the infection a long time, then maybe my body became desensitized to it like allergy shots. I don't know but it was a thought. But I have a lot of tape worms in my head but I discovered they are on my scalp. They are getting close to my eyes though. When I rubbed my stomach, I hit something that moved it in my head. I found one tapeworm on my top intestine. When I pinched it to move it, it worked a little but then I started rubbling from one side to the other. It pulled one one out of my head and down my neck which what was creepy. Then I put it into a pile. But it went back up there.

I am trying natural things I have read like, turmeric, coconut oil capsules, and garlic i think you are suppose to use one at a time but I am trying all three. I added a probiotic. It has made me anemic so I added vitamin c and iron. Plus I take ubiquinal, fish oil, a daily vitamin, a B complex, 10000 mcg of vitamin D. I decided to really load on vitamin D because I don't leave the house much and it does boost your immune system.

So I try not to think about it during the day at all. Only when they move a lot, I have to take some xanax and they have progressively got worse. Taking the cymbalta has really helped me deal with my pain better. I am not longer praying for a break from the break to rejuvinat myself. The medicine allows me to do that on a regular basis which has been a blessing for me. I am in bad pain but at the same time, I am cutting back on my pain pills. I find that humerous since my pain is the worse it has ever been, that I am able to cut back.

What I have run into, is that i have gone to UVA medical center in Virginia. I have been to a few specialist for the same problem but because they all share the same file, I am only there for a brief time because they read previous notes saying they think I am delusional. The only test that has been done is that blood test and one stool sample. The cdc says you need to do several days of stool samples because you have to catch them on the day their eggs have been released. That is the only thing that makes the test posittive is the eggs. Not them being in the stool. Plus I think it may be in the bone in my right arms where the eggs are made because since this has happened, that bone has felt broke. I have gone to the emergency room to get an x-ray. But it reminds me of when I fell and broke and snappend my ankle off. LIKE i was telling you,it is an 8 on the pain scale.

So I don't know what to do. I say infectious disease today where they share the record. I told my doctoe that I was going to another doctor to get a referal. That I didn't want the hospital to taint a fresh visit. When I looked up who to go to for a parasite infection, it pulled up gastrointestinal docs all across the board and no others in most cities. He said he would do that for me. I felt my stomach have different sacs that popped on my intestines. II is scaring me so bad but for the most part I am staying quiet. The other day they were moving so bad, that I just cried for 10 minutes. That is so not me. I normally try to ignore my feelings and focus on others and imagine their pain. I feel selfish confronting my own. But i know that is wrong.

The hardest part is my kids not believing me. And resenting me for taking me to the hospital. I have stood by them all their lives and I feel i deserve the benift of the doubt. I saw this sigh for depression the other day but i felt like it applied to situations like this. It said the worse thing you can do to someone who has an illness that is invisable is making them prove it to you.

Well thanks for listening to my rant. I am sorry to talk so much about it.

Apr 30, 2015 11:24 AM

Profiler, please, please, please do NOT apologize for getting this off your chest. I can't imagine how frightened you must be knowing that you have parasites and that when you go to the doctor for help, they tell you that you are delusional. Have they not recommended an MRI so that they can actually SEE the masses of parasites and where they have deposited their eggs and or where they colonize the most?? The only thing that I do know about tape worms is that they travel through your system and hatch in your bloodstream, travel into your lungs and then out into your system. I know they go into your intestines and are flat and segmented and can grow very long. If you have a bowel movement, usually they may start to emerge but if you don't get the head (which is hanging on by hooks on the intestinal lining), they will just grow their segments back. The other worms that you are experiencing may be another kind of worm altogether but you certainly should be treated like a human being and given every test they can give you to find out what the heck is happening to you. You are NOT selfish, you're suffering and your scared like anyone else would be. My heart aches for you that your children don't believe you. Do they offer any opinions on what they think those lumps are and the striations that are in the mucus that are moving around??? Please, hang in there, I know it is unimaginably hard and I can't even imagine what I would do if it was me. You are part of this community and you need to know that if you have to come here every day and vent and ask questions or have someone to lean on, there are many of us here... I am one of those people. You need to lean on someone, here I am... (Just don't lean too hard on the left shoulder, it's the more painful one... LOL!!!) Keep the faith no matter how difficult. I will be praying for you, Profiler. I hope that when you go to the next doctor, he/she is able to help you. In the meanwhile, you will be in my thoughts and prayers.

Apr 30, 2015 1:03 PM

Thank you always in pain. I had tears I'm my eyes when I read your post. It has been the only compassion that has been shown to me. My wife is on my side but she is tired of hearing about it. When I felt more tape worms enter my scalp the other day, I was really scared and she said she would take me to the hospital. Then she whined and said can we just wait til tommorow. I am truly terrified about them comings out of my eyes and the offer was made. I was really scared when I had to wait. My daughter took me for the first time last week for the first time because my lungs and my stomach. There was something wrong. I told her that my son usually takes me so I didn't understand why she was so upset. She said you he just doesn't tell you how he really feels about it. I have given everything to my kids. I have raised them right. Everyone comments how kind and caring they are and respectful. I raised them to be that way. But they can't show that to me. My son does it out of duty and loyalty. That is a plus. But to know that it makes him mad hurts a lot.

But your words helped me so much. Thank you for your compassion.

Apr 30, 2015 3:48 PM

Profiler, I couldn't have said it as well as AlwayZ. Next time you go to a hospital maybe you should go outside your area, since they share info systems. Is there a hospital or an infectious disease doctor you could go to that you haven't been to? I know it's stressful for you but please try to hold on until a doctor or hospital finds out what's happening. I'm praying for you! 🙏🌼

Apr 30, 2015 4:45 PM

i am going to go to a totally different city and I am going to go to a gastrointestinal doctor because since they are in your intestines. That is what the internet recommended for parasites. i just forgot to do it today. I was just a little stressed from yesterday and nothing was moving today. My stomach is full of lines of tapeworms. I can feel them running from my intestines up my shoulder. One is going down into my pinky. Yesterday, my right arm turned red while the other stayel looking normal and my fingernails turned blue. I have this open sore on my face. When I put a flash light or some after shave on, it breaks out into a pattern that looks like a worm in the skin.

Even though I am terrified, I am still keeping happy a little. The cymbalta is really helping me have some joy and helping some of my anxiety but most of all it is giving me the abilty to deal with my pain. I normally take 3 pills of methadones three times a day for the nerve pain. and 4 oxycodones a day. I am taking only 2 actural pills of methadone and no oxycodones. I am still in bad pain but my mind is able to handle it without getting wore out like it use to with the taking the the pain pills without cymbalta. Yesterday I had to take my pain medicine just to have it for my drug test. I wanted my doctor to see that I was using my pain medicine. So I used a regular dose. I think it doesn't matter. I think it looks for any trace. But I don't want her to stop giving me pain medicine when I need it. I know that sounds stupid but I tell them I can reduce it they will probably never let me go back up when I need it.

Well, thank you so much. You don't know how much this means to me. I guess maybe you must know. But when everyone thinks you silly and don't offer compassion and won't believer you. To just have one person offer compassion made me cry very hard. I am sorry to admit it. Men can cry. But I should control my emotions a little better.

I told my wife once that if this thing kills me, to sue the my doctor, who I have been begging for months to to give me test. She took that as I was suicidal and called my psychiatrist and he started treating me for delusitons. So I decided I would please everybody and take the medicine for delusions. I have been on it for 5 weeks and nothing has gone away. Several days before my wife called, my psychiatrist told me he thought i was doing fine. I even told him what was going on. I told him what my doctor was thinking and he said he didn't feel I was delusional.. But my wife changed his thinking because I was worried. She said she was sorry. I forgave her because I know she did it because she cares. How can you blame someone for that. I just wish she would have thought of the consequences of the action. It really made me look unstable.

Well, thank you again.

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