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will the pain end. when will i feel like me again?

Sep 06, 2015 8:36 PM

Evening... Just dropping in. Hope everyone had a soft pain day. I was wondering has anyone found a meds combo that gives them there since of life back. Without the fog. The aches the emotional upsets. Etc. So far all I've found is tramodal and loratab . they work barely regular. Right now I feel like poo. I drovey sister around today and helped with unloading grocery's

Sep 06, 2015 9:43 PM

Fibro girl, have had a really lousy kind of pain day where nothing is going right. I feel like I'm fighting this big giant back pain monster by myself. In regards to meds, no. They will not put me on narcotics for any reason except post-op. Tylenol or Advil only!

Sep 07, 2015 12:45 AM

Newfibrogirl, as someone who has been battling chronic pain for over 20 years, I can tell you that over the years I've had changes in my medications many times. They seem to help a little bit for a while and then stop. I'm on a major amount of pain medication and it just takes the edge off that I can function. Unfortunately, I'm never out of pain and usually carry a pain level of around 7.5/8 on medication. Everyone is different in their tolerance and how they deal with treatment and which meds do and don't work for them. The trick is to adjust your attitude to the way you are. There will be good days, there will be bad ones. Same as everyone's life but, don't think that you can't have a life because you're in pain. It's not easy, it's not always pleasant but it may just be what is the new normal for you. You'll learn to sort it out. You'll be in my prayers and just remember that we are all here for you. 🌻🙏🏻

Sep 07, 2015 1:34 AM

Alwayz is right .. when you deal with high levels of pain everday and they can't find a curable cause it comes down to trying to adjust your life and finding a new normal. Its not any easy task at all but it can be done.

Right now I feel better than I've felt in almost 10 years but I am still in pain. Some days are worse than others but I've been able to do more.. things I never thought I'd be able to do again...like spend more than 20 minutes at the mall lol last month I trimmed bushes. Omg i was so happy I think my husband thought I was loosing my mind lol.

Its still not the person I used to be.. don't think I will ever be again and I was angry about that for a really long time.. the only thing that did for me was make it that much harder to find a managable place but you can adjust and find a balance but it will take time.

Meds are tough .. they effect everyone differently. I tried tramadol once and it made me feel like the walking dead. Lortab didn't help me at all but it makes my husband loopy same with percocet which I take and it doesn't make me feel anything but it does help my pain. I can't take the conventional fibro meds as Ive tried a few and I'm allergic to them. I take soma which is a muscle relaxer and that helps my fibro and nerve pain a lot but they did classify it as a narcotic a couple of years ago. I take orencia for the rheumatoid arthritis which has helped alot thank goodness cuz over the winter i thought i would hurl myself off a tall building if something didnt change soon. Ive had to find several new norms over the years and I imagine this months norm might not be next months norm .. but im learning to adjust as needed and you will too! ((Hugs))

Sep 07, 2015 11:10 AM

Linda, LOL @ hurling yourself off a tall building. I said I was going to set myself on fire and run out into traffic if the weather didn't change. As you can all see, neither of us committed harricarri and are here to give you all a much needed laugh!! 😜

Sep 07, 2015 11:27 AM

Recently I've found my right combo of meds. I've been running well for more than a week now I think. Provided I don't do anything stupid like trying to fix my car head lights, bending in such awkward positions making me flair up.

I'm almost 70% of norm I think. I am able to achieve more than 8 working hours a day, I'm definitely much happier than I was for a very long time now. So much more productive and being able to spend more time with my family out of bed.

My meds as follows;
Morning: one OxyContin 10mg, 1x Valium as needed. Not everyday I wake up with stiffness.
Noon: morphine 5mg to drop my pain level or prevent increased pain.
Night: 1x amitripiline 25mg, 1x OxyContin 10mg, one Valium (2x if I feel a lot of stiffness and can't sleep due to pain or even stress) 1x morphine 5mg.

What I've noticed: I've asked my wife to wake me up at a certain time if not waking up after my night meds wears off, I'll wake up in a lot of pain and lose all my energy for the day as a result.

Current pain level: there are high level of pain but it is definitely less constant now. I would average my pain level through out the day to be about 3-4. Very very happy with my current situation now. Was like alwayz, averaging an 8 or more before and I couldn't handle the pain. Barely worked or even got out of bed then.

I do hope you guys find a solution somehow or find the new norm.

Sep 07, 2015 9:39 PM

I wasn't doing all that well at the beginning of the year, using Tramadol, TENS unit, Tylenol Arthritis, muscle relaxers, and voltaren gel. Then after sjogrens was diagnosed and they put me on Plaquenil, it made a huge difference in dropping my daily pain from the 7-8 range to 3-5 average. Today's about a 6 though as I'm stiff with muscle cramps, likely due some to the weather and some to the grandkids overnight Saturday. 🙏🌼

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