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Work, work and more work

Dec 18, 2016 7:45 PM

I work 50++ hrs a week, I'm a mother of two young children and the list of conditions I possess are just getting longer. When I continue to make it another day, it just motivates me even more to stay strong. I am an Aries and I refuse to let my body consume my mind... it is so hard though. The amount of pain I am in constantly and the brain fog and can't forget about the swelling, that is ugly, in my joints... 😣😣 I always think "how long can I be strong?"....how long...? #7yrsdiagnosed #nopainnogain

Dec 19, 2016 12:47 AM

I was a home health nurse. My doctors told me working was killing me. It took another 6 months before I decided to listen. Diagnosed in 1996 - but living with it since 1971. (yup - I am old).

Actually the brain fog is why I have up doing a job I loved. One day I couldn't remember how to get to one of my regular clients home. That terrified me. If I couldn't remember that then I had no business setting up medications or administering treatments. :/

Wishing you the best of luck. One day at a time.

Dec 19, 2016 3:35 PM

The fibrofog (& dementia/memory loss the docs say I've got) have robbed me of the processing info to do my last job (coder), and now I struggle to even follow a recipe to cook. With my health deterioration since 2010 I'm no longer able to work. But to try and combat the memory issues I play brain games and read. And to try and not decondition too fast I'm doing stretching, light weights, short walking, and elliptical bike. It took me 4 years to accept I'd never work again, and I filed for disability in 2014. It wasn't an easy choice but it eventually became the only choice I had. Just take it a day at a time, a step at a time. Maybe you won't have to give up your work altogether, maybe you'll just need to modify your work schedule or duties. At least you can hope so. Sending you hugs love and prayers! 🙂💕🙏🌸

Dec 19, 2016 5:58 PM

Thank you so much, FlappysLady81. I can see that you're strong. Sending hugs your way. I appreciate your response.

Dec 19, 2016 9:03 PM

I also am struggling to work and fibro fog scares me I think I hate that the most. I know I need to stop working but can't afford to. I am currently fighting for disability.

Dec 19, 2016 9:28 PM

I am also a nurse and definitely have issues with getting my brain to work efficiently. I repositioned my paralyzed vent patient one night and completely forgot to raise her head and feet before leaving the room. I realized it later and went back into her room to suction her, but forgot what I had gone in there for and, once again, left her room without elevating her head and feet. That's usually a habit.... reposition, feet up, head up, done. It may sound small, but 2 years with this patient, that was the first time Ive forgotten. There are other things too. Definitely concerning.

I have 3 kids as well. They laugh at my forgetfulness. Its good when I can laugh with them about it, but it does make me wonder how forgetful/demented I'll be as time goes on :/

Dec 19, 2016 11:04 PM

FlappysLady81...I appreciate your post too. Have had fibro 30 years...dx in '95...had to stop working as RN after being let go for too much missed work...thank you MimiKay, i know you understand...MamaWainscott11...so impressed that your are working while having so much pain but remember doing the same...Zoegirl50 I have had no income & dependant on wanna be ex-husband since 2012...waiting on disability determination...MeLiz...I so relate. Thank you for sharing...one day at a time is such good advice...again..thank you all for your candor.

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