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working or not with fibromyalgia

Dec 22, 2014 12:34 AM

I am curious how many people are able to work. When I read about fibro it seems severely down played. I take 1200 mg gabapentin and now all they do is pump me full of antidepressants. I have terrible headaches and pain. The statistics i find show people can have a happy life and work with no issues once treated and all their symptoms are great. I am not working and with the headache, exhaustion, pain and so forth I can't imagine working when doing a load of laundry exhausts me.

Dec 22, 2014 1:17 AM

I hear you, Im 24 years old and a college student I would love to have the freedom i had before fibromyalgia to be able to handle work and school. Meds don't help much me either. Are you able to work from home?

Dec 22, 2014 2:42 AM

I am not able to work from home. Currently unemployed. I have other heath issues and some issues that have not been diagnosed. I have applied for disability but I have heard stories that they will turn you down and you have to get an attorney.

Dec 22, 2014 6:10 AM

Definitely definitely get an Advocate or Attorney. It's very difficult to get it on your own. I had an Advocate to help me, and the it helped immensely with the stress. Also, don't panic if u don't get it the first time around. That's pretty par for the course. Just regroup and get someone to help you.

Yeah, I've noticed that "happily ever after" crap added to a lot of conditions, including mine. It's almost always bulldo. Sorry 😒. It's a long road for treatment, and a lot of times the doctors just seem to stop caring when your pain doesn't respond "properly" to their recommendations. All I can say is try not to give up. Keep pushing. Find a new doctor if u have to. Just remember that we here will always support and help u.

Dec 22, 2014 7:47 AM

I was diagnosed a year and a half ago and I've been out of work for over a year now. With my constant pain and migraines, there was no way that I could work, go to school, and take care of my kiddos!! I have filed for disability but I've been waiting two years this coming May, no relief in sight... I've had to file with a lawyer to try and help me but if I didn't have my husband to work and pay the bills, I'd be screwed.... Everyone seems to think that I'm fine because I don't "look" sick... Wish I could just touch them and transfer my pain over for a wake up call!! I think judges are not considering Fibromyalgia as a "real" disease...upsets me greatly!!

Dec 22, 2014 10:02 AM

I have been able to work (part time at very stressful job) and now I am in grad school. I got help from physical therapists to manage my symptoms and slowly get me stronger, being active as possible is important. I started small (very short walks or swims) and gradually increased.

Dec 22, 2014 5:17 PM

Hi,
I agree about the 'happy ever after'.
My life seemed to change overnight. I lost my freedom, strength and stamina, not to say my memory, reasoning and figure!!!!
I am slowly adjusting, but I just try not to think about the things I can't do,all the meds help in that department! I used too think myself quit intelligent, now I just seem to mumble things.
I run a business from home, which is great, my hubby took early retirement to look after me

Dec 22, 2014 5:28 PM

Sorry, for some reason, I have had to give my answer over two sections.
I try to go to the office accross the yard every Woking day. It gives me a purpose and makes me get up.. But if I'm having a bad day pain wise, I might only put in a few minutes, then go back to bed. How many jobs could you do that. I often say, nobody would have me.

But I see no tunnel with lights I'm sort of just getting used to it.
Thanks for reading:-))

Dec 22, 2014 6:12 PM

I work a full-time job with rotating shift work and overtime but I have been told that I have a relatively mild case of fibro. I am struggling and I am very glad that my job is not physically demanding. I have to maintain a strict workout schedule and a very restricted diet or I get really bad. I can't afford to not work so I force myself to push through.

Dec 22, 2014 7:05 PM

I do not have fibo but I am not able to work at all due to my chronic pain and I also am trying to get my disability and have been denied so now I have had to hire an attorney to handle my case. It is still a game of cat and mouse where I am the pond waiting to get an answer. Good luck

Dec 22, 2014 7:55 PM

I was diagnosed in 2006. I didn't want to start taking a bunch of meds, so I only took meds as needed. By 2009 all I could do was lie on the couch all day long. There was no relief from my pain. My kids had to be quiet, I couldn't cook, or anything. I finally said I would take anything to make it better.

It was a process. Finding the right combination. It took some time, but I am much better than what I was. So much better!! But the pain is still there. 8 years and I am still amazed, or should I say dumb founded, at how Fibro can effect my body. Sometime my meds change. I am VERY lucky to have fabulous Dr.

I am functional now, but the pain can be set off at any time. I have found meds that have worked for me. They keep the pain from being constant.

My happily ever after is one day at a time.

Dec 23, 2014 2:28 AM

In a strange way I am glad to hear others can't work. I have been in pain since 2005 and more recently diagnosed. Havent worked in almost a year. My doctor has been great referring me to a rheumatologist, neurologist, and dermatologist but seems a little skeptical.Perhaps because I said I have given up ever being 100 percent again. Like most I have additional heath issues. Best wishes to all in this journey.

Dec 23, 2014 7:16 AM

I work part time in a physically demanding job. When I stop moving as much is when my pain is worst. When I eat the foods I should and I avoid the foods I need to, my body is able to heal during those times. Most medications give me headaches and the side effects aren't worth the benefits. I do not have as great of pain as many nor have I had it as long. But I'm an advocate for finding ways to heal rather than covering up pain.

Dec 23, 2014 11:33 AM

The fibro is secondary to my back issues, but I haven't worked full time in 4 years. I've had a couple of part time jobs, but nothing serious.

Dec 23, 2014 2:12 PM

There is something I don't understand. Fibromyalgia is classified as a central nervous system disorder: "...appears to result from neuro-chemical imbalances including activation of inflammatory pathways in the brain which results in abnormalities in pain processing." Food and diet isn't going to have any effect on how your brain processes pain. Are doctors actually trying to treat Fibro with diet?

Dec 23, 2014 2:21 PM

Hi Amie, I don't know about treating fibromyalgia specifically by diet. However, I was diagnosed with food allergies this year, to wheat, whole grains & soy. Though I am not on a gluten free diet, I follow its guidelines due to my allergies more than other diets; and the paleo diet. Since reducing or eliminating most foods with wheat or soy (almost impossible), my pain has decreased slightly. I also have a genetic defect (MTHFR gene) that keeps me from metabolizing & absorbing vitamin B. One problem with that is low B can cause more pain. It's just my opinion, based on my own issues, that many illnesses and treatments are interrelated. I'd love to read the information you found. Which website is it on?

Dec 23, 2014 2:48 PM

Thank you for explaining, FlappysLady81. 😊 I can understand how all of the sensitivities you have could most certainly effect your Fibro. Inflammation can be a terrible thing on its own, but with Fibro, that inflammation will be on top of already inflamed nerves. I can't even imagine how you must feel.

Dec 23, 2014 2:49 PM

On utube there is a video called An Update on Fibromyalgia by Sean Mackey it is about an hour long but has the best information I have been able to find. Definitely worth the watch. I was able to explain to my husband and have him understand without having a deer in the head light look.

Dec 23, 2014 3:16 PM

@shammagren, looks like the video might have been done by Dr. Sean Mackey, from Stanford University Medical Center

Dec 23, 2014 3:48 PM

@momofsix
I HATE ppl who say "...but you don't look sick/disabled." I'd love to reply with "...well, you didn't look stupid..." If someone you care about says that, educate them. Ask them, how are you supposed to look? Tell them that most medical conditions are on the inside of someone's body, not the outside. Take them to a doctors appointment and have the doctor explain to them your condition. Print out material and highlight your symptoms. Have them read this (even if u don't have lupus, it's a very helpful explanation) http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ . I hope this helps you.

Dec 23, 2014 4:17 PM

Thanks to Amie & shammagren. I'll check that info out

Dec 23, 2014 5:51 PM

You're very welcome 😉. I also will take a look at the video. Thanks Shammagren.

Dec 23, 2014 8:34 PM

Hi all- I work about 30-40 hours a week with fibro. Would love to cut down more, but financially can't. I am a mental health therapist. It is really difficult sometimes. Stress= pain and my profession is very mentally taxing. As of late I have thought about seeing way less clients and supplementing my income with wor from home doing something else... But what?,

Dec 23, 2014 9:26 PM

Jess, I'm starting to work from home too, just in case I'll need to cut back. I'm currently still working 40-50 hours a week in my regular job and don't how much longer I can handle it. I'm switching to an easier job in January. Message me at iathompson22 on yahoo messenger if you want to swap ideas :-).

Dec 24, 2014 10:51 AM

Wouldn't it be great if we could start a list of helpful sites no conversation just the health issue with a link. We all could help each other probably more than anyone else as we understand each other.

Dec 24, 2014 1:29 PM

Shammagren, have you submitted that idea via feedback? Maybe they could create it within this app. I think its a great idea!

Dec 24, 2014 4:26 PM

I have not flappyslady81

Dec 24, 2014 9:31 PM

I a! 25 and also have fibro with lower back pain that is not from fibro and they have to give me morphine and hydrocodone just so I can function. You may think it is drastic but that is all that helps.

Dec 25, 2014 8:41 AM

Have not worked in a year and a half. Scary with no health insurance and meducatins costing greater that 1000. A month. Fighting for disability is a joke in this country. I have taken care of patients that I was sicker than. I am just to middle class, financially stable own a home, small retirement Even with an attorney and diagnosis notes that exceed the government's list - denied three times. Going before a judge soon . Any suggestion please message me!

Dec 25, 2014 8:14 PM

Can one still go for disability if they want to work as much as the can... Part time? But don't make enough to support self. What is the most hours you can work before they say no to disability!?

Dec 26, 2014 8:05 AM

I am not sure but I believe there is a limit time and income wise. www.ssa.gov has good FAQs, you might find an answer there.

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