Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Working with a local Pain Specialist

Sep 29, 2016 8:15 AM

Recently started working with Pain Specialist group on better addressing the needs of patients with chronic pain.

Would love if the group could post the top 3 issues they face on a daily basis.

Sep 29, 2016 9:49 AM

Fatigue
Concentration (Fibro Fog)
Pain

Sep 29, 2016 9:57 AM

Fibro fog
Pain, joints & muscles & spine
Easily fatigued

Sep 29, 2016 10:31 AM

Spine pain. Wrist and Thumb pain. I Butt pain going down back of Thighs Lol pain in butt!

Sep 29, 2016 10:46 AM

Spinal neuropathic pain
Weakness & fatigue
Concentration-fog

Sep 29, 2016 5:25 PM

🤐Chronic PAIN syndrome,
😫Chronic FATIGUE syndrome,
Chronic BLONDE moments! 🐫

Sep 30, 2016 1:38 PM

Joint pain
Lupus fog
Fatigue

Sep 30, 2016 2:16 PM

Chemical sensitivities
Fatigue
Pain

Sep 30, 2016 5:45 PM

Fatigue

All over pain(hot/cold sensitivities)

Fogginess

Sep 30, 2016 6:48 PM

Muscle/Joint Spasms/Pain & Swelling

Spinal neuropathy

Fatigue

Oct 01, 2016 1:05 AM

Fatigue
Migraines (leading to nausea, dizzyness, unsteadyness, slurring words, fibro-fog)
Pain

But also, being treated like im lying about my symptoms because the condition fluctuates and i 'look well', irrelevant of what im feeling ie peoples perceptions/raising awareness. If this was helped, perhaps we wouldn't have so much stress/depression/anxiety, which makes my top 3 worse.

Oct 01, 2016 8:51 AM

Thank you. Anything we can do to help make this app more helpful to address these needs or help physicians better tailor to these conditions?

Oct 01, 2016 7:05 PM

Pelvic pain, fatigue, lack of sleep due to pain.

Oct 02, 2016 8:14 PM

Migraines.
Pelvic pain.
Anxiety/depression from the illnesses and frustrated from nothing working.

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