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working with fibro

Aug 13, 2015 7:59 PM

How do you guys manage a job? I just started working full time after 4 yrs of not working. I have been denied disabilty twice, and am unsure what to do. I had a severe flare uo for two days and missed work. Weirdest thing ever is I find out the owner of my company has fibromyalgia, and donates alot of money to fibromyalgia research every year.

Aug 13, 2015 10:59 PM

I used to work full time in a very physical job. Now I can only work 4-5 hours a day and I need a nap. Makes me sad.

Aug 14, 2015 5:13 AM

I'm fortunate enough my company was happy to negotiate the working hours they are happy as long as I do the forty hours in the week so I'm starting later in the day (mornings are my worst) and finish later to make up - if I have a day where I have a bad afternoon as well - I do a short day that day make it up a little on each of the other days. They've set up my work area better to minimise strain. Now everyone understands what I need they have been very supportive - has taken a while to get there but works really well - I just make sure my boss is kept in the loop with all my treatments etc

I am very lucky that I was working there for 15yrs with nearly no time off before this started to affect my work not everyone will be able to do that - but hopefully some negotiation is possible

Aug 14, 2015 6:16 AM

Melissa, that's wonderful that your bosses knows and understands. Like Ularoo & Sweetiepie, I'm sure your boss will work with you. Having not worked for four years it may take time for your body to adjust, so you probably are going to feel it more. See if they will let you have a flexible schedule. Try to make your work area ergonomically friendly.

I stopped working in 2010 for major surgery, but I was already having fibro symptoms. In the past years I've developed dementia, sjogrens, hypothyroidism, pelvic floor dysfunction & pelvic congestion syndrome, along with other issues, like dementia, imbalance, dizziness & tremors. I struggle most with short term memory. My job required mental and physical strength, both which I no longer have. I had always hoped to return to work, but at this point I doubt it will ever happen for me.

I hope and pray you will be able to work flexibly with your boss's support. Just remember the community is behind you. You're in my prayers! 🙏🌼

Aug 18, 2015 9:15 PM

Thank you! Flappyslady81. Im hoping that my understands and can relate considering she has fibro as well. I actually function well early in the morning and not so well in the afternoons. Im hoping she will be understanding enough to allow me to stay on my early morning shift.

Aug 19, 2015 8:38 AM

I work full time sitting and tyoing.. my wrists and arms and hips are my most source of severe pain. I try to get up and walk every little bit but it's not always easy.. then I go home and take care od a 7 year old. I usually have flare ups on the weekend from pushing through..

Aug 19, 2015 9:19 AM

I am about to go into insurance/investment sales and since its self employed I can do my own pace so hopefully this helps

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