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world can be so cruel

Apr 01, 2016 9:40 PM

The past weeks have been hard for me just getting ready to go to work full time with my continously crps pain, I do it for my kid who are still very young and need my support. So my husband drops me off the metro station to catch the train to work since it's right at the next stop, here is an older lady with a bag, and wants both of my seats, one for her bag, she refused to seat next to me, ask me to get up so a groceries can take the spot, I told her am disabled can't stand for a longtime she says she has the right because she is older. I got up since my stop was next, I get to work, by this time am stressed and all invflares, 3 co workers just, start passing nasty comments, ..get yourself out of this place just go,.. just roll yourself on a wheelchair and get a life, unbelievable, as if that's not enough I take my kids to mcdonalds and park in the handicap spot, 3 older folks approach me, how dare, I park the, had no right as they need it most since they are older, I looked at them ,and said you have no idea what I go through, they are days I can't walk, or move, and the called me names.. by this time I was so emotional from all the days torment that I just broke down and wept, my 5yrs old cried so hard he didn't understand why they were mean to me. I feel like, I should just stay home and not face the outside world anymore. My husband can't understand my I am so emotional and breaking down all the time, my family have no idea, what crps does.. I feel so alone in this, but am glad I found you guys I can pour out to, for you are living and walking on the same path as I am. Am just so broke and this pain won't leave me alone

Apr 01, 2016 10:20 PM

I'm so sorry for your day First and for most your not alone never alone we r here.

Apr 01, 2016 10:22 PM

Thanks the stress just makes worse

Apr 01, 2016 10:24 PM

Yes it does and I know u have more stressers then the o es u mentioned here. I don't know what to do about the general public and there perception on your and ability or lack there of. And your husband well maybe just keep working on him show him literature and take him to ad many Dr appointments as u can he will come around.

Apr 01, 2016 10:33 PM

I'm so sorry you're going through such a tough time right now. It's not easy living with such a complex disease that is invisible! I get yelled at for using my disabled parking placard too, it is not easy living like this!

Apr 01, 2016 10:42 PM

How horrible that people can pass judgement on someone without knowing a thing about them! I have also had people say, "Well, you don't look sick" or "You're too young to have such pain". As if pain, illness, and/or disability is reserved for the elderly. I wish some people could experience my pain for just one week and see how they handle it. As for your husband not understanding your emotions, he doesn't have to understand to be compassionate and supportive. I hope he realizes that.

Apr 01, 2016 10:44 PM

Hopeful, I'm so sorry. Your day sounds unbearable. You're pushing yourself past your limits and trying so hard, and you get yelled at for your efforts. Do what you need to do for you. You may not be able to change anyone's opinion of you, so you don't have to spend energy trying to explain anything to them. If they're being rude and childish, rather than having to justify yourself...tell them they're being rude, childish and/or horrible and just walk away. Don't waste breath on hateful people.

Apr 02, 2016 5:19 AM

Thank you all, I knew I could get better insights from my pain family. I appreciate you all, am still waiting on my ketamine infusion procedure in May, I will keep you all posted, I know am not always on line as am trying to work and be there for my kids, but am here for you guys praying for each of you every day
Love you all

Apr 02, 2016 3:44 PM

Hopeful, I am so sorry you weren't through this, especially all in one day. So many elderly think "disability" is a right of passage for the aged community. They fail to see, understand, or accept that disability has no barriers, that even children are born with disabilities. If we're under 70, in their eyes were have no right to take up parking spaces that belong to them.

As for coworkers, they can sometimes be the most rude and critical of all. We spend an average of 30-40 hours a week with them after all, so they are almost like living with family (who can be rude and negative). If they can come in and do the work without complaint, then (in their eyes) was should too, or else we should go home permanently so they don't have to acknowledge us. Our family, well they say we tend to hurt the ones we love the most, especially when we live with them.

Unfortunately we can't help the public or coworkers, beyond trying to educate them. Family we can not only try and educate them, but also invite them to doctors appointments, to allow the doctors to help them understand. It took my hubby going to appts, to hear the doctor's comments and answer his questions, before he began to understand and became my biggest supporter and defender. Maybe your hubby would be willing to go with you. You can always share websites and print outs with him, and with others. As Dlwc58 said, do whatever you must for yourself. You know your body & your needs better than anyone else. Hugs & prayers that you have a good weekend. 🙂💕🙏🌼

Apr 02, 2016 3:51 PM

Thanks flappysLady81, some good word of wisdom

Apr 02, 2016 3:52 PM

One question... Where do you work? I will overly medicate myself. And go postal (verbally) postal that is..on those insensitive CO workers!

Apr 05, 2016 5:28 PM

I work for a union insurance company in accounting

Apr 07, 2016 9:55 AM

Invisible illnesses suck. I know the feelings all too well :(

Apr 07, 2016 1:17 PM

I am sorry people were so horrible. I dont know wth is wrong with some of these folks :(

Apr 07, 2016 11:17 PM

Don't worry about it there is always someone out there who will be like that.i am 12 and have crps to I found out when I was 7 that I had it and when my teacher and classmates didn't understand what was going on they would tell me I am fine.we will always be here for you no matter what

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