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Worst day to date :(

Jan 18, 2016 7:48 PM

This is my worst day since all this started happening in August. I can hardly move. I have aches in my joints with numbness in my hands and arms. My left side of my tongue is numb too. My back and sides feel like someone is squeezing me. My headache is actually the least of my worries as it's a constant, but very dull pressure. My neck feels like it can hardly hold up my head. I did take my imitrex but it hasn't kicked in yet. I don't even know if it will help since I don't have extreme pain in my head.

Does anyone have any tips for me? I feel immobile but have really young kids (3 and 1) that I need to care for. Help please!

Jan 18, 2016 8:56 PM

Well first I want to say how horrible. I know it feels helpless a d scary.. Then I would say u need help. Like family Friend or neighbor. Can u call someone? Secondly do u happen to have a wheelchair or anynchaiie with wheel's. If u don't have a wheelchair then the chair with wheel's is another way to move about the house. Make it a game for your kids so they don't get scared.if u happen to have a multilevel home maybe slumber party where u are now just for safety reasons. Hope u get better soon
Let us know how u r

Jan 18, 2016 9:10 PM

I agree with fibrogirl, and maybe see if a chiropractic visit would help to, if your lime me a stair step neck can cause a constant headache and maybe even a migraine. It's worth a shot. I'll be praying for you!

Jan 18, 2016 10:18 PM

I have an appointment with my Dr on Wednesday. I'm going to ask if it could be my neck. The Imitrex finally kicked in about an hour ago! My husband stepped up and took care of everything tonight, supper and bed time!

Jan 18, 2016 10:25 PM

I get migraines that start in my neck. My cervical spine is so very bad, the pain starts there, creeps up my neck and then takes over the entire left side of my head and BAM... Migraine! I'm not on migraine meds so I have to just ride it out (with all the side effects). I hope that he sends you for either X-rays or an MRI of your cervical spine and that you get the answers you need. {{{Hugs}}}πŸ’•πŸ™πŸ»πŸŒ»

Jan 18, 2016 11:10 PM

I have an MRI scheduled for Feb 16. They are doing it with MS protocol which I think is brain and spine, but I'm not 100% sure.

Jan 18, 2016 11:52 PM

Perhaps you can ask them to put you on the list of "fill ins" in case someone cancels and then they may get you in sooner?? πŸŒ»πŸ™πŸ»πŸ˜Š

Jan 19, 2016 12:45 AM

Don't know if your mri is with contrast, but I would ask. It's the best way to get comprehensive answers. Take care.

Jan 19, 2016 2:44 AM

Alwayz, I was told they don't do that. :( I will ask on Wednesday, donamel! How does the contrast work?

Jan 19, 2016 5:35 AM

They do most of the MRI without the contrast dye, then at the end, they pull you out and inject the dye and put you back in to complete the MRI. They can see the differences before and after and it can show up more to make a more accurate diagnosis.

Jan 19, 2016 8:07 AM

Neat! I will ask :)

Jan 20, 2016 7:22 PM

CDNgirl37, I'm sorry to hear you were hurting so badly. I oppose your doctors appt today was beneficial and your pain has decreased. You'll be in my prayers, that the MRI showed answers. Hugs! πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 21, 2016 12:24 AM

My appointment today was okay. I have to go for a CT scan to rule out a brain mass. She said likely Friday.

Jan 21, 2016 11:48 AM

We will certainly pray that's not the case! Hugs!!! πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 21, 2016 12:02 PM

You'll be in my prayers that the CT Scan rules that out. {{Hugs}}πŸ’•πŸ™πŸ»πŸŒ»

Jan 21, 2016 5:55 PM

Thanks :) They didn't call me to give me an appointment. I'm kind of shocked. Not sure what to expect. Do you think they'll call me tomorrow to go tomorrow?

Jan 21, 2016 7:12 PM

The greatest positive of today is that I had my best feeling day since December!!!!

Jan 22, 2016 10:25 AM

That's awesome, CND!!! I hope it keeps up!! {{{Hugs}}} πŸ’•πŸ™πŸ»πŸŒ»

Jan 22, 2016 8:50 PM

So! I had my CT today. Brain mass and the like have been ruled out! Now to wait for the MRI on February 16th.

Jan 23, 2016 8:39 AM

CDNgirl37, Thank God!!! I am so happy that the test ruled out any brain masses. That must be a huge relief. Sending you great big {{{{Hugs}}}} πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Jan 23, 2016 11:19 AM

It is such a huge relief! I've never been so grateful to still know what is wrong! The radiologist yesterday was so nice! He said "I know this doesn't give you answers but all the big, scary, you could die from these things are gone (he said it much more eloquently). Don't be afraid to continue to ask for help." When I told him I had an MRI booked for February 16, he said "That's a great next step!" Talking to him made me feel like we will solve this! Then my family doctor texted me last night to let me know that the CT and the biopsy they took last week are both normal. I am so grateful to have her in my corner. I know we will get answers because she is a very dedicated doctor :) I am in good spirits today even though I feel super crummy.

Jan 23, 2016 12:21 PM

It's always good to know that the worse possibilities do not exist. It's wonderful to know that one is not actively dying!!! No blood on the brain, no masses, are all great news. While it's not easy to wait for the next test results, at least whatever they show should be something that you can handle. We'll all be here with great anticipation as this next step unravels itself.

Jan 23, 2016 12:39 PM

Do you have any friends with kids that could come over for a "play date" and hang out? Family that could come sleep on the couch?

Jan 23, 2016 12:42 PM

Awesome news!!! If I could, I'd jump up and down for joy for you!!! LOL... πŸ˜ŠπŸ’•

Jan 23, 2016 5:07 PM

Thanks donamel and Alwayz!

Serena, my mom came for the day to help!

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