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CatchMyPain Community and Pain Diary App to manage chronic illness

Would you pay 1$ per week for...?

Nov 25, 2015 9:45 AM

Dear community members,

I need your feedback regarding our plans about the future of this app. Our goal is to help you to manage your pain and eventually even get rid of it. We believe this community is a tremendously important pillar in being able to achieve this goal. The kindness and support that you share with each other on a daily basis can’t be expressed in words and it has exceeded our wildest expectations.

But chronic pain is a crazy and strong beast and we believe that a combination of several pillars and tools is necessary to be able to tame it. We have been thinking intensively about how we could help you tame that beast and we have experimented with a couple of things, e.g. providing guidance from pain experts. We believe that we have finally come up with an affordable solution to help you tame the pain beast. Here's what we have in mind:

In addition to the existing community this app would allow you to:

- Track your pain, stress, fatigue, medication, treatments, and many other important aspects of your condition. A chart would visualize the progress of each aspect which would help you to identify patterns, triggers and causes for your pain. And it would help you in talking to your doctors and therapists (similar to our previous app).

- On a regular basis, Dr. Fouradoulas and other pain experts would write articles about conditions, treatments, the latest research insights, and more. And they would post replies in community discussions to provide a medical opinion in addition to your personal experience. The goal of this would be that you end up knowing everything there is to know about your condition including ways to treat it and manage it.

- Then there would also be several coaching programs which would teach you ways to manage and deal with your pain. Such programs could include mind body exercises, meditation, ways to improve your quality of sleep, guided physical exercise, and more.

All this is meant to help you get back in the driver's seat of your life and have the pain beast driving in the back seat or even leaving it behind on the road eventually.

Now, the two big question are:
1. Would like to have such a pain companion?
2. Would you be willing to pay 1$ per week to have access to all the tools and information above? This contribution would allow us to provide those services on a long term basis and it would allow us to be independent of any kind of sponsors. You would be able to cancel this subscription at any point in time.

I am very eager to read your feedback.

Kind regards,
Daniel
Pain patient and CEO and co-founder of Pain Companion

Nov 25, 2015 10:29 AM

Daniel
This app has been a Godsend and the kindness and love and information we share with each other is priceless! I have always been and always will be open to trying new things to tame this beast we call chronic pain. I would certainly be willing to pay a dollar a week to be able to have access to all of these other tools and resources.
Thank you for always trying to make things better and easier for us to get help and for always being available to us if we have questions.
I hope you have a blessed Thanksgiving and I'll be looking forward to seeing what comes next with this fabulous app!!
Best regardsπŸ™πŸ»πŸŒ»

Nov 25, 2015 10:48 AM

I second what what Alwayz said as she couldn't have said it any better!

Nov 25, 2015 11:20 AM

I'd be willing to pay that, definitely! The only thing is family has no consistent income...

Nov 25, 2015 11:41 AM

Same here it should like it could be a deal making it 30.00 or so a month. However I also have no constant income nor an account I could use. But I also appropriate the help you guys are providing. Thank you Daniel and Dr F. Sorry can't spell ur name . it great.

Nov 25, 2015 11:46 AM

Wow, many thanks for your amazing feedback. Your support makes me really happy :-)

@newfibrogirl: I guess you mean 30.00 a year. That sounds like a good idea!

Nov 25, 2015 12:07 PM

It would be nice, but I don't have consistent income at this point.

Nov 25, 2015 12:34 PM

Thank you for creating this app first and foremost! I never realized there were so many other people having to cope with chronic pain until I downloaded this app just recently! It's already been so much help especially being able to talk to others with similar symptoms! I would be more than willing to give $1/wk for the updated app!

Nov 25, 2015 12:35 PM

30.00 a year would be great.

Nov 25, 2015 12:45 PM

I would be willing to pay $1.00 per week for the updated app, that's only $4.00 per month and I would spend much more than that going to a therapist for guided relaxation (and related services) or to a doc for info on how to manage my pain. Not that the app could replace MD visits, but it sounds like I might get more info on current research etc than my pain specialist has time to give me. So yeah I'd be willing to give it a try. How will this be billed? It would be easier for me to afford if it was billed monthly, if it would be a full year in one bill that would be tougher for me to manage. Thank you for the app, you guys have created something very special here

Nov 25, 2015 12:58 PM

Daniel,
Sounds like a resounding YES to me!!! Here's to success..πŸŒ»πŸ™πŸ»

Nov 25, 2015 1:14 PM

@Daniel.. Yes. Sorry my math was way off. Trying to do toa y things at once. Lol

Nov 25, 2015 2:08 PM

Daniel, I'm definitely willing to pay $1/week, which amounts to $56/year. You could do a $30/year, & then possibly offer specials, say for a week, per person, on an as needed/wanted basis (even in a group setting), at say $2-5/person/week. That way you could raise a little more. Say for instance, do one week on CRPS, another on DDD, another on depression/anxiety, another on sleep, abusive/codependent relationships, etc.

Another option is, for anyone who is able and wants to, do a charitable donation that would help cover the base cost for others who can't. Maybe the company sponsors could even help in that area the most.

Possibly have special info offered by organizations like the Sjogrens Foundation, Arthritis Foundation, etc...

Thanks for all you've done, and all that's yet to come. πŸ™πŸŒΌ

Nov 25, 2015 2:32 PM

Flappsy, I love how your brain works!! Great, great ideas!! {{{Hugs}}} πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Nov 25, 2015 3:14 PM

I absolutely would and I just joined.

Nov 25, 2015 3:58 PM

Daniel, I haven't had the opportunity everyone else has with this family, but you can definitely count me in to contribute. With my short time being here I have felt more companionship and support than I have from those who have known me, who I was prior to becoming I'll and who I am now....it is very refreshing to become part of a family who understands.

Nov 25, 2015 4:54 PM

I've only been using your app for a few days but it's turning out to be an absolute godsend. I've always had trouble trying to accurately map my symptoms and moods so I can give my doctors an understandable picture of what I'm going through every day but this way is easy and clear to see. The additions you mention would be fantastic so yeah I wouldn't mind $1 a week for access to more help as and when I need it. Thank you.

Nov 25, 2015 5:25 PM

It sounds great but even a dollar a week to someone like me who has no income, a young child and a husband working his butt off just so we can continue to get further behind it is not doable. We have already lost almost everything including being homeless and at risk for homeless again it is a fortune.

Just a thought...a lot of insurances are big on tracking and having a health advocate to help manage healthcare. Anyway is there any thought of contacting some of the insurance companies including state insurance companies out there? This could potentially reduce doctor visits, tests and specialist as it helps the "patient" zero in, in addition to being the cheapest pain management system ever. I could go on with tons of benefits. All insurance companies want to reduce costs and we are some of the most expensive patients there are.

Nov 25, 2015 7:03 PM

I wouldn't mind paying a dollar a week. But I would not want to pay it it at a yearly amount. I woul rather pay it monthly. I could not afford to pay a one time fee of fifty two dollars in one month. I didn't know how you intended to bill it. Also, I am afraid of the ones you would lose without the consistent income. Maybe you can have a free version that seperate X the tools available.

Nov 25, 2015 8:13 PM

Daniel, and I don't have a lot of money but to be able to continue to be a part of this family, I would pay a lot more. They are priceless. The tools and other resources would just be a plus.

Nov 25, 2015 8:20 PM

Would this be a separate app, or an update? I'd like to be able to continue messaging and talking to the peeps on here.

I think that cost would be fine (for a more normal person) but as several other people and I have voiced, we really don't have a consistent income.

My dad is the only person who can really work so far, and were always behind, on bills, school tuition/supplies (my sis is on a massive scholarship, only $25 per month), meds, rent, utilities, etc.

The new options sound really awesome though, and maybe someday they'll be available to me, even if I can't really imagine it happening...

Nov 25, 2015 8:25 PM

I agree with ferretbandit, the cost could be prohibitive for a lot of people. You must remember that most people who are like us, live on disability benefits or just have one person in the house working.

Nov 25, 2015 9:02 PM

So here's my thoughts on this... I just recently after fighting disability for five years did get it. But for those 5 years I had a hard time scraping up money to pay copays and gas to go to the doctor.
Therapy got axed and depression set it. During those 5 years there's times I couldn't afford 1$ a week then... I struggled with not having support then... I know I'm not the only on out there like that.
***something about us pain sufferers is we really love to help others because that's just what helps us... I would say no just for the reason of others... The struggles of this are real and they're debilitating...

Nov 25, 2015 9:09 PM

I would also hope that the services you are mentioning will be in addition and that the current services that were already part of the free app will still be available. I would love the extra but I understand everything can't be free.

Nov 26, 2015 3:48 AM

Wow, thank you so much for your support! This family is amazing.

@Iann4963 You would have the option to either pay 1$ each week or to pay for a couple of months at a discount, e.g. 30$/year.

@FlappysLady81 I like the idea about the specials and I love the idea about the charitable donations for those who can't afford the subscription. Our long term goal is to get health insurances involved and let them cover all the costs for you. I guess they would still save a lot of money because of such a pain tool.

@shammagren Yes shammagren, that's a great idea about the health insurances. We have been talking to a couple of Swiss health insurances so far and they told us that once we can show that this app saves costs, they would be happy to cover the costs for the patients. I'm sure the same will be true for the US, UK and other countries.

@profiler Yes there would still be many free things in the app. E.g. we wouldn't start charging for the community. You should always be able to talk to others free of charge.

@ferretbandit It would be an update to the Pain Companion app and the app would then be available on all the platforms. You would be able to continue messaging and talking to people. I am sure we will find a way to make the additional features available to you and to others who are struggling with the financial situation.

@JenniC Thank you very much for sharing your story. I am very glad to hear that you were able to get the disability. I am sure it must have been a tough fight. We will find a way to help those who are in the same situation like you were.

Again, many thanks to all of you.

Happy Thanksgiving to everybody,
Daniel

Nov 26, 2015 7:22 AM

I havent been a member for long but I woyld pay $1 a week to have access to those extra services. The support I have had here is tremendous and in comparison to what I spend on my health now, I can totally justify $1 a week but also empathise with those who cant. I was a single mother with 3 children at the age of 21 and I know how hard the struggle can be for some people financially. I feel blessed to be in a better, albeit slightly better, financial position now...maybe those of us who can afford it could sponsor another member? I would be prepared to pay $2 per week to sponsor someone. Xoxo

Nov 26, 2015 8:02 AM

Daniel, I would like to know when the pain companion app will be available for IOS. Also (maybe I'm going to sound like a blithering idiot, what is it called? CMP Companion?) I would be willing to sponsor a pain family member who cannot afford the cost of the update, the tools are really something I feel will be helpful and if I can help someone else have access to them, then I will do what I can. I may even be able to sponsor 2 People. How long before the new app will be up and running?
I hope you have a blessed Thanksgiving and thank you for all of the work you are doing to try to help make our lives better.
Best regards

Nov 26, 2015 12:10 PM

Always, the companion app is called pain companion

Nov 26, 2015 12:15 PM

Thanks Ferretbandit. It hasn't come out for iPhone yet

Nov 26, 2015 12:17 PM

What is pain companion?

Nov 26, 2015 12:31 PM

Profiler, it's an app that goes along with CMP that enables you to direct message other members and other tools. Since they only have it on Android I can't get it yet. Hey, Happy Thanksgiving Profiler.. {{Hugs}} πŸ’•πŸ™πŸ»πŸŒ»

Nov 26, 2015 2:30 PM

@WhatTheHell40 and @Alwayzinpain: Wow, thank you very much for your kind generosity!

@Alwayzinpain and @profiler: You can already use the Pain Companion app in your browser (on your phone or computer). Just visit http://web.paincompanion.com/ and login with your CMP credentials. We plan to release a first version of the additional services before Christmas. We would then extend the service step by step on a weekly or monthly basis. I believe it will need a lot of work to setup such a program. Once we see that the updated Pain Companion app is working well, we will release the iPhone version. We hope this will be in early 2016.

Kind regards,
Daniel

Nov 26, 2015 3:34 PM

Yes, I would pay that. It would be cool if there was different options on how much and for how long - like an option for a $1 a week, or pay for a month, or a year. Or maybe even automatic withdrawals. I also love the idea of sponsoring someone who can't pay. I've been in that position recently. Perhaps there could be a donation pay option as well, as others have mentioned. 😊

Nov 26, 2015 8:44 PM

I would be happy to do the $1.00 a week.

Nov 26, 2015 10:38 PM

I would be willing to do the $30/year and may be able to help another out with it also. Thank you so much for this app.

Nov 26, 2015 10:46 PM

Daniel, first I want to say thank you for this app, thank you for working so hard to find a way for people like us to get some much needed support and help. I have been on here a few months but really starting to talk to people more recently. The people I have met on here are amazing! !!!! You definitely have 2 Awesome ladies that have been the welcoming comitte,the calm before and after the storm and most supportive women I have ever met. that is Alwayszinpain, and Flappyslady81. I think everyone can agree with me on that. now as far as the 1 dollar a week, I would definitely pay that and more for thefriendships and family feel and support of this group plus adding in all of the extras that you are speaking of would be awesome. I do have one issue, like others have said we also live paycheck to paycheck and most of the time, we barely can make ends meet. My health is very bad in addition to all of the pain issues with fibromyalgia and fatigue and depression. My husband was also diagnosed with multiple Sclerosis this year so with all of the medical bills and meds and just basic bills we have a really tough time. But I am all for the App updating, I would love iable it if there was a way that we could say pay extra if we have it on some months that could pay for those who can't pay on certain months or weeks. I have a ton of ideas, just like all of us that would really make this app the best ever. I really appreciate you taking the time to talk to us and ask us for our input instead of just changing things without any notice. You all are Awesome and this app is Amazing. Thank you again Daniel anDr.nd Dr. For all of the help and resources yet to come.

Nov 26, 2015 10:49 PM

Ps. So sorry for the errors in my writing, I use auto text alot and sometimes it takes has a mind of its own. Lol. Hopefully you knew what I was saying.

Nov 26, 2015 11:33 PM

Sorry but that would only increase pain. Spending about 50-60 percent of monthly income on medical expenses as it is.

Nov 26, 2015 11:56 PM

Daniel, would there be a way that someone could, if they chose to, pay a little extra and have that money go towards helping others who really can't afford the cost have access too? I'm not rich by any means but would gladly kick in extra if it would help someone else get the help too. If there were others who would be willing to do this it would add up quickly. Speaking for myself, I wouldn't want to know who was or wasn't getting the help or who specifically was benefitting from what I kicked in so I think it would have to be a pool of some kind all the extra money went into and was then drawn out on a per person need basis. I know that would mean extra work for you all, but I'm in if you are.

Nov 26, 2015 11:59 PM

Sorry Irish, I didn't see you had already posted this, fibro fog and fatigue day today!

Nov 26, 2015 11:59 PM

That's the same thing I said @ lann4963. at times where I did have extra I would love to pitch in for others. I wouldn't want to know either of who got what but I definitely want to help in anyway possible. This is such a wonderful app.

Nov 27, 2015 12:01 AM

Lol its all good. It just means that more of us are willing to help keep this family together.

Nov 27, 2015 2:01 AM

It's that some cannot afford the dollars to keep it going. There are some of us on low income who are paying 50 - 60 of our income on medical needs and may have to make a choice between food and prescriptions! It's not a matter of won't, but can't.

Nov 27, 2015 2:34 AM

I'd be willing to pay, however, living on disability doesn't provide much room for that. Try to keep that in mind. Many of us live off of disability or in a one income family. That sounds like a great version of the app though!!!! I love it already the way it is now. :)

Nov 27, 2015 9:53 AM

Yes $30/yr and the option to sponsor someone who cant afford it would be a great option! I would definitely help.someone else.

Nov 27, 2015 9:56 AM

Me too, it would be my pleasure to kick in and help someone have access to the additional tools and services becoming available. Family always helps family and I will do whatever I can for my pain family!!πŸ’•πŸ™πŸ»πŸŒ»

Nov 27, 2015 11:54 AM

This place is amazing. It really is a family. With social media being what it is, and how ugly it can become, this is a study in what it could be if people would let it. You guys are awesome!

Nov 27, 2015 12:26 PM

Smarie330, I was struggling to pay for my meds and food too. I stumbled upon a government program that helps low income people pay for their meds. ( I am on disability and Medicare )I didn't think at the time I would qualify but I did and at the highest level of help. My out of pocket went from over $300 a month down to around $60. I'm not sure of your situation but it might be worth looking into. It's not something they advertise or anyone told me about, I just googled help with med costs and found it that way. It also adjusted my out of pocket yearly max as well. Hope this helps. Sending you prayers and gentle hugs!

Nov 27, 2015 5:17 PM

I love this App and I would be willing to pay $30 a year for the extras.

Nov 27, 2015 11:06 PM

I think you have a great thing going here, but unfortunately I could not pay for these extra services. We just don't have extra money.

Dec 01, 2015 8:57 AM

Many thanks for all the additional feedback.

I would like to give you a brief update on our plans: Dr. Fouradoulas will keep posting replies inside the community discussions. For a couple of days you will still see the blurred effect on them needing a one time payment to reveal them. But we will introduce a subscription model as soon as possible. All articles and replies will be included in such a subscription and we will continue to add more and more services over time. Stay tuned ;-)

Kind regards,
Daniel

Dec 01, 2015 1:52 PM

I'm hopeful that your test of the new updates work, I'm a bit concerned about an interruption to the flow of a discussion, because you might not be able to tell what was said but if someone else sees it and replies, it might not make sense. I guess if we're just gonna get it that would be fine, but sadly won't happen for me in the foreseeable future.

I'm just a bit worried that I'll get confused, or distracted by the blurred effect since I'm not able to do the upgrade πŸ˜₯πŸ˜³πŸ˜”

I really hope the effect turns out good and helpful though! Best of luck, and thanks for making this app! πŸ˜β€πŸ˜„

Dec 01, 2015 7:04 PM

Daniel, is it possible that those of us who could pay extra, the funds would be used to "gift" those who aren't able to pay the full amount? Sorry of like our power services do at the end of the year... USA utility companies ask for donations towards helping less fortunate customers. πŸ™πŸŒΌ

Dec 01, 2015 7:46 PM

I have also lived on a financial roller coaster, so I understand completely how $1 a week can hurt, especially when payment is typically expected in a lump sum.
Would there be some way that folks wold be able to pay as they go? I think it would be more manageable for many, and if for some reason they aren't up to using the app for a while, they don't lose anything....

Provided the app could give us the option of saving our login info so we don't have to type it in every time, one option would be to set up to accounts that we can deposit funds into. Then when we log in we would se how many days we have remaining; that way we can add funds when we can afford to. If you want to offer a discount for purchasing in larger quantities you can and that would be awesome; but we could still buy days or weeks at a time, too.
Just a thought...

Dec 02, 2015 10:48 PM

I have know money

Dec 03, 2015 1:48 PM

That's fine by me. No offense, but as Dr. F is exactly the type of Doctor I would hope to avoid in real life, I have no desire to read anymore of his posts.

Dec 03, 2015 6:12 PM

Why cant this app just be a gift to those who suffer day to day. To a lot of us it is our only support. A lot of people also can't work due to their chronic pain and can barely afford what they need to live. So if it's not free then I'm out!

Dec 04, 2015 10:43 AM

If you have state medicaid check with them we just found out they reimburse mileage in gas cards. I am zero income so this is an incredible help.

Dec 05, 2015 3:11 AM

I really only use just the app itself; I very rarely read or comment on posts in the community, and I would have little or no use for the proposed extras so no, I wouldn't be prepared to pay an additional regular amount for services I won't use. So I hope there'll be a non-subscription model for people who only want to track their pain and symptoms and nothing else.

Dec 05, 2015 1:14 PM

What if there were separate topics for like info with doc involvement, or just messages

Dec 05, 2015 6:44 PM

I am glad you are looking at ways to improve the app. I have multiple health issues and thus use 5 different apps to try to better understand and manage the symptoms, track changes, have record of what is going on with treatments, my body and mind to be able to give a better discription to my caregivers. I appreciate the app and the community.
I am on a fixed income and would not be able to pay the $1/ week. I truefully would discontinue using the app.
I think that it would be useful for better youtubes about how to use the app and how it could benefit the person.
Beets

Dec 05, 2015 7:57 PM

To all who cannot afford the $1 a week. I have asked (and so have others) if there is a way for those of us who want to, or can to kick in some extra money to go in a fund to help others use the added tools within the app. It seemed pretty clear to me that the app is still going to be free, you would just pay the subscription fee if you wanted to take advantage of the additional services. There would be no reason for anyone to leave the community. The pain charts, the things that were there from the start and of course, the community will remain free so you would still be able to have our communications and help one another through both the bad and good times. So, when the app goes through any changes, I hope and pray that none of our family members leave. πŸŒ»πŸ™πŸ»

Dec 05, 2015 11:26 PM

Those additional services sound amazing, but I'm one of the ones who, unfortunately wouldn't be able to. It seems like such a small amount, but I'm about to lose my health insurance and am appealing the loss of my long term disability and filling for SSDI. (I can't even describe my terror at the thought of being in this massive amount of pain and no way to pay for meds and medical care as well) I t think it's an awesome idea, though, for those able to take advantage of it. And if you do have the gift option, I would be thankful for the aid and as soon as things settle financially for me (please pray, so scared) I will pay it forward. I'll be watching for updated information. ❀

Dec 06, 2015 12:43 AM

Always, I guess I'm just not sure that it would stay the same, or how they'd add the new changes without changing everything. Just from a logical standpoint, I'm not sure what the plan is in creating the new features. I just know that sometimes original plans get lost due to the need to have the money to continue improving the app.

For example, what if you can't afford/don't want a doctor reply, like in one recent past where someone was just describing their experience, but the doc asked why they posted it? I just tend to post replies, and sometimes just vents. I guess I'm not looking for a doc on those. Could we separate it somehow?

It was interesting the forest couple of days, and now I just want the bored effect to go away because with brain fog I'm easily distracted and confused.

Thank you to all of you who are willing to assist those of us who want features, even if they're not currently affordable. Yes, I appreciate it.
The orientation of the screen is still a issue for me, and if the main screen gets too clogged up, it may no longer be user friendly, and already seems to be heading that way.

Don't get me wrong, I love the community here, I'm just beginning to feel distracted with the bunches of buttons and options and upgrades, instead of keeping it simple

Dec 06, 2015 3:07 AM

I understand Ferretbandit. I hope things don't change too much that it makes the app difficult to use or cause any of the pain family to no longer want to participate. I have grown very fond of this wonderful group of people and I can't imagine not being able to check up on the people that I have formed such strong bonds with. Perhaps we can make sure we have one another's email addresses so we can't ever lose touch and then I can still be there for my peepsπŸŒ»πŸ™πŸ»

Dec 10, 2015 4:07 AM

Again, many thanks for your additional feedback. I can understand the concerns about the potential changes and I want to assure you that we will always listen to your feedback and develop the application according to your needs. This app is for you and without you it is nothing.

@Deana we would love to be able to provide this app as a gift to those who suffer but unfortunately we need to somehow cover our expenses. Currently our team consists of 4 people who are working full time on this app/community. Our long term goal is that health insurances will cover the costs, making the app free for patients. But it takes a long time to convince health insurances to spend money... but we are working on it ;-)

Kind regards,
Daniel

Dec 10, 2015 4:48 AM

And what about those of us living in countries that provide free healthcare without the need for insurance?

Dec 10, 2015 10:40 AM

The app is definitely worth it, but as many others have said, a consistent income may be a problem. Maybe there could be a free version and then the upgrade could include more features for $1 per week. It would also be nice because then, people can go week by week depending on there situation and still have access to so many great tools!

Dec 11, 2015 1:29 PM

The application crashes on the iPhone a lot. That would need to be cleared then I might buy weather, advice ect on app but not pay more for. Also I can't see reply all the time to reply

Dec 19, 2015 5:20 AM

Yes i would be willing to pay that.

Dec 29, 2015 8:00 PM

Honestly, I would have to leave because I couldn't pay. I am on disability and struggle to pay bills as it is. Sorry.

Dec 29, 2015 10:28 PM

Daniel, can you please clarify for the community...

Does staying in the CMP or Pain Companion app require paid membership? Can users still access the regular version, without the paid for extras, or will they be locked out of the app for non payment?

Thank you kindly for your upcoming explanation. πŸ™‚πŸŒΌπŸ™πŸ˜·

Dec 29, 2015 11:40 PM

Just a comment, CMP pain tracker kept crashing and then work until I opened the community tab. I Re downloaded 10 different times over about a week, and then said "to heck with it" when it still didn't work. Now, I'm bummed about the two separate apps because the pain diary on here worked just fine. I also didn't realize that would require subscription.

Flappy, I can still see the forum on Pain Companion, but not CMP. But then the opposite part (forum) is glitching in CMP, so they each only do half the work instead of being integrated/the same. Getting pretty sick of it πŸ˜₯πŸ˜·πŸ˜”

Dec 30, 2015 6:01 AM

How can I access other forums?

Dec 30, 2015 12:33 PM

Ferret, that's the same way mine does. I can only see graphs or enter pain symptoms in the CMP app. I use the Pain Companion app for forum chat. πŸ€’πŸ™πŸŒΌ

Dec 30, 2015 12:35 PM

Donamel, the Pain Companion app is only ideals for Android devices so far. I don't use any other chat forums. It's all I can do to keep up with everyone here... Lol!πŸ€’πŸ™πŸŒΌ

Dec 30, 2015 3:39 PM

I know what you're saying, Flappsy!! If I am off a few hours then I have to play catchup. It's not easy but I do my best. Have to make sure all my peeps know that I'm here for all of you. πŸ’•πŸ™πŸ»πŸŒ»

Jan 04, 2016 11:06 PM

I wouldn't pay due to app inconsistent but I like it

Jan 09, 2016 12:37 PM

A big yes from me as well i have just started using this app & it is nice to know i am not alone with constant pain & can get access to help when i need it.

Jan 13, 2016 1:23 AM

I was just saying in the comment about how you should be able to see in graphs how you conditions have been. I would gladly pay a dollar a week to have the upgrades. But I would also like to see a plavmce where ppl who have multiple conditions and multiple Dr's could track each condition. The problem I have is I see 7 specialist and they all want me to keep charts. This has been great but I can't share the info with them and they each want there own. But like I said I would pay for the upgrades you were talking about def. The only question I have is if we have any issues and we are paying how will they be addressed and will ppl that pay have so e type of resonsible customer service that can handle issues and concerns in a timely manner?

Jan 13, 2016 5:50 AM

Bshuler, graphs for individual dx is an awesome idea! πŸ˜·πŸ™πŸŒΌπŸ’•

Feb 04, 2016 10:20 PM

I Love this app but am also on a similar one that I love.

Feb 04, 2016 10:21 PM

My fibro team app.... twice the info and support with both apps.

Feb 12, 2016 12:56 AM

I am not willing to pay more than a one time fee of $5.00. I live off government disability. Even $5.00 is hard to spare.

Feb 12, 2016 1:25 AM

There's another app, My Fibro Team. Very good info and can communicate with others, teams etc. It's free.

Feb 13, 2016 9:36 AM

I'll try it thanks.

Feb 28, 2016 7:24 PM

Hi everyone, i just joined this app a few minutes ago. Just reading some of these posts of people willing to sponsor others gives me back a little faith in people! I've had an incredibly rough few years- fibromyalgia since 2004, a pseudo tumor cerebri around 2009 fixed with 2 spinal taps, an injury in 2011 where I was pinned under a 75 pound box that landed on my head, in 2012, my ex bf tried to kill me by pulling in front of a car going 55 mph & the other driver didn't hit his brakes & car wrapped around my body, leg was crushed & EMTs had to use jaws of life & pry me out. Now I have sciatica nerve damage. I have bone spurs & while recovering from being t boned, ex caused another almost car accident, impacting all my lower back discs. I finally filled a restraining order & things got so bad, he tried getting neighbors to assault me. My rescue dog was shot with a bb gun BC she let me know my neighbor was crouched down, watching me. Called sheriff's Dept 35 times in 2 months from attempted break ins, threats yelled to me at night, etc. They told me next step, I would be killed!! His friend told a witness to my ex violating his ppo, that he was going to kidnap me & get rid of my body ... My mom helped me move & more has happened & I can't afford even $1 a week. I want to post more, but holding phone hurts this long, hopefully this app will still be available when I can get back on. GOD BLESS EVERYONE, whether in pain or caring for someone in pain. Have to lay down for now. Thank u for this app.

Feb 28, 2016 7:45 PM

Bless your heart sJade! I hope & pray you are far away and safe from your ex. You're in my thoughts & prayers. Hugs! πŸ™‚πŸ’•πŸ™πŸŒΌ

Mar 06, 2016 10:54 PM

$1.00 a week ($4-$5) a month depending on what month that would be a great deal!

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