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Would you want to help others with your disorder by spreading awareness?

Jul 31, 2016 4:50 PM

I run a blog https://thelifeyougaveme.wordpress.com that tells my story of chronic illness and the things I pick up along the way to help other with their struggle.
I want to spread awareness of chronic disorders from a human perspective (people with chronic disorders sharing their stories as opposed to just the bare facts)
I believe that knowledge is power, and that when people become more aware of what we go through every day they would be more understanding and sensitive to our needs.
Would you be willing to help by sharing your story here https://surveyplanet.com/5783927fa7539ada6d465d40
Or
emailing it to me at Chamascraftycorner@gmail.com
You can either do an interview or just share your story.

Aug 01, 2016 2:36 PM

Thanks for sharing Hopetobe

Aug 03, 2016 2:46 PM

This is a good idea Hopetobe. But I'm not all in with sharing my private life. Let me think 🤔 on it. 🙂💕🙏🌸

Aug 03, 2016 3:44 PM

I thought I did a reply, but I can't find it. But I blogg about my illness also. The people that follow it are basically from our support page. Which is only open to those with Tarlov Cysts. But I do update on what happens to me, my rambling thought on everything from journey, doctors, family friends, . But if you want to look at it, it is funnytailbones.wordpress.com . I'll try and find ya the next time I can sit at the computer.

Aug 04, 2016 11:38 AM

I clicked the link but it won't take me anywhere. My life is dedicated to helping others, being an alcoholic in recovery that is what keeps me sober, at least. Passing on my experience,strength, and hope to others. But only those who want it. If they don't I tell them that I am here when you are ready.

Aug 05, 2016 1:46 PM

I have no problem helping people where I can. If my journey and surgeries and recoveries and chronic, ongoing issues can help someone else cope, then I'm happy to oblige. I clicked on the link but it didn't work on my phone. I'll have to give it another go or copy and paste it into my browser. {{{Hugs}}}💕🙏🏻🌻😊

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