Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

You don't look like you're hurting. What????

Aug 31, 2017 6:57 PM

People think if you hurt physically or mentally even emotionally you are suppose to look bad. The reflection I give to the world is definitely not what lies within.

Aug 31, 2017 7:52 PM

I know it 🤗🤗 I tell people I look nice going out because I don't have to look like how I feel inside 🤗🤗🤗🤗

Aug 31, 2017 7:57 PM

Yessss 😆😆😆😆 I get that I dress up and ppl look at me like oh she just talking uh no I'm just pretty and in pain lol

Aug 31, 2017 8:07 PM

@MochaBarbee how do you get the energy to wake up and get dressed I remember I used to wear heels to the grocery store now I can't even bend at times to tie my sneakers. And I love to get dolled up.

Aug 31, 2017 8:13 PM

I can't bend most of the times. I'm not saying everyday I wake up and get dolled up and put on high heels. Most times I'm in the bed when I'm feeling bad. However, if I have to go out of the house then I choose cute comfortable clothes, flats, and some makeup.

Aug 31, 2017 8:15 PM

I don't at times even have the energy for that but I been taking magnesium vitamins and for the past week it's been helping with my fatigue

Aug 31, 2017 8:16 PM

I'm new here. It's nice to meet you and fellow pain patients.

Aug 31, 2017 8:19 PM

Now I don't have Facebook Instagram Snapchat or any social media lol 😂 but on here do you follow ppl or add them as Friends or do you just join discussions?

Aug 31, 2017 8:31 PM

I love this app because the people on here understand what others in your life can't seem to comprehend. It makes you feel so alone in the world when no one understand your pain. Here people understand and encourage you. Plus you can vent when you need to....😊

Aug 31, 2017 8:34 PM

@Fibrowife. 🤗🤗 Welcome to our support group. 😊😊 Very happy you joined 😊😊

Aug 31, 2017 8:36 PM

@Fibrowife. On here you join discussions and can also pm. I don't get on Facebook either. .

Aug 31, 2017 8:40 PM

Oh ya I love that. "You look so nice you must be feeling better. ". NOOOOOOT!!!

Aug 31, 2017 8:42 PM

@Westrengirl thank you 😁I guess I have to get used to the app lol

Aug 31, 2017 9:00 PM

@Fibrowife. Your welcome 🤗🤗

Aug 31, 2017 9:43 PM

I always tell people to look at my eyes, they seldom lie. Love your headband. It's stunning.

Aug 31, 2017 11:45 PM

MochaBarbee I get that, I've recently decided to wear some of my "nicer" clothes because I'm soo fed up of feeling ill that sometimes when I wear nice things it's easier to put on my "everything is great" mask and it also lifts my mood slightly.....if I look good then I feel a bit better.....altho I hate the fact that I get "oh you look good, are you better then?" "No I'm not feeling better but I still want to look good!!!"

Plus I'm wearing my nicer clothes because I don't go out to socialise much anymore so my nicer clothes get left in the wardrobe to collect moth balls otherwise!!!!

Sep 01, 2017 11:59 AM

Sometimes on my worst pain days where I HAVE to go and do things I will dress my nicest. Something psychologically about being dressed with make up makes me cope slightly better and keeps me from crying in front of customers and such. I can't sustain it long and I usually crash on my next day off, but it can get me through one day at a time. I totally get the frustration with the "but you look good, so you must be feeling better, right?" comments. What the healthy people don't get is that I will never BE better. Even on "good days" I hurt some. Unless they have had a permanent chronic illness people assume you either "get better" or die there is no place in our general culture for the permanatly sick. Luckily we have places like this app where we can commisserate. :)

Sep 01, 2017 1:05 PM

@maskingthepain Your right I'm never pain free. People don't understand that. They automatically think if you don't look like your gonna die, then your all better. When I have a good day I typically crash and im in the bed the next day.

Sep 02, 2017 12:07 AM

I totally get this. I'm new here. First time posting. This happens so much. I agree with all of you. Just because you feel like you are on deaths door doesn't mean you have to have everyone see it.

Sep 02, 2017 11:08 AM

@Blackeyes your right but people will never get it. When we are in pain we need to make sure we look like we crawled out of a dark hole. Thats if we want someone to believe our pain. 😑

Sep 02, 2017 3:12 PM

It's one of the most frustrating parts of all this. Not bad enough we are in constant pain and the effort we put in to looking desent makes the pain worse. Then to have people question our pain is infereainting.

Sep 02, 2017 5:22 PM

When I can't join in an activity people ask me why, I say medical reasons, they look me up and down as if to say well I can't see anything.

Sep 02, 2017 5:34 PM

It's horrible. I'm getting to the point where it diesnt hurt as bad when this happens. Although it still picks my heart a little. I use to feel kindness toward them not want them to feel pain but now I'm like yeah let them feel it. And I know if they did they would leave me alone.

Sep 03, 2017 1:24 AM

Hearing you guys experiences just confirms ignorance of this sort is not just just in Dallas TX

Sep 03, 2017 3:10 AM

I don't have what you guy do, but i do understand the looks/remarks people give when i say i can't do something because of my pain. I've even gotten the looks from nurses at the hospital i went to at the beginning of the year and my mom over heard them say to the security guard "she's just got a headache." A headache that caused me to go partially blind because of the amount of spinal fluid building up in my head. I hate it when people don't understand, they never will.

Sep 03, 2017 8:24 AM

The one thing Ive found out about being ill is if I run into someone that has cancer or diabetes or some other illness, my heart goes out to them. I believe what they say and I have great compassion. Being ill myself has definitely increased my compassion for all people who suffer.

Sep 03, 2017 8:59 PM

Its definitely an eye opener, i never quite understood until i was diagnosed with IIH in 2012. It really makes you see the world from a different perspective. It sucks to go through the pain but at the same time its blessing because it gives you more compassion for the people with the illnesses that aren't visible on the outside. Every one of us are different with how our illnesses affect us, but there's still that unique understanding for each other and i love that part.

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