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Young with pain

Aug 10, 2014 2:50 AM

I have had pain sense I was 16 years old. I'm 26 now and wondering if there are any young people out there with chronic pain?

Aug 12, 2014 11:28 PM

I'm 17 and currently dealing with crps. Every steps hurts the soles of my feet, and each time i move or knock my arm against something I feel like crying! so far doctors have not given me any successful pain treatment, so if u have any that's worked for you please suggest.
how did u get through having chronic pain I honestly feel I can't deal with it any longer?? I just want my life back

Aug 14, 2014 4:56 AM

I can totally relate to what you feel. when I was first diagnosed I was studying dance and had to give up my dream on becoming a professional dancer. but now I moved on and are studying at the university. there are times when I hate my pain of course but it will never stop me from trying new ways to feel better. right now I changed my diet to vegetarian food and I stoped eating sugar. I have visited a acupuncturist and herb doctor to se if that might help me deal with my pain. I think we are all different and need to find our own ways!

Aug 14, 2014 5:54 AM

My pain actually started with dance as well. I used to dance 6 days a week in pretty much every style. After receiving numerous stress fractures in my leg is when the pain started and just never went away. I wasn't diagnosed until about 6months later. I too have had to give up dance which was extremely difficult for me. I've moved on now, but when ever i see a people dancing it just reminds me.
Is there are name for your condition or is it called chronic pain.
at the moment I am getting really frustrated with my doctors as I feel they don't care. they aren't really doing anything to help me besides from telling me to do deep breathing and mindfulness tricks. which is a great idea in theory but after years of constant pain your just want relief! I bet u understand!

I'm missing so much school and falling so far behind which is quite stressful, I want to study medicine and become a doctor myself so bad grades aren't really helpful when trying to get into uni's. how did u cope with school?

Aug 14, 2014 5:54 AM

My pain actually started with dance as well. I used to dance 6 days a week in pretty much every style. After receiving numerous stress fractures in my leg is when the pain started and just never went away. I wasn't diagnosed until about 6months later. I too have had to give up dance which was extremely difficult for me. I've moved on now, but when ever i see a people dancing it just reminds me.
Is there are name for your condition or is it called chronic pain.
at the moment I am getting really frustrated with my doctors as I feel they don't care. they aren't really doing anything to help me besides from telling me to do deep breathing and mindfulness tricks. which is a great idea in theory but after years of constant pain your just want relief! I bet u understand!

I'm missing so much school and falling so far behind which is quite stressful, I want to study medicine and become a doctor myself so bad grades aren't really helpful when trying to get into uni's. how did u cope with school?

Aug 15, 2014 3:01 AM

yes I really understand you'r frustration. sometimes I just want to cut my feets of to not feel that awfull pain. I'm diagnosed with fibromyalgia, basicly chronic pain. but what I first got my pain wham I was 17 my diagnose was juvenile arthritis. the doctors in that field are all like "take this pill". and I did witch made everything worse. and I to did not feel cared for by the doctors. that's why I'm now trying alternative medicine. cuz they actually care.

I don't know how I cope actually. I didn't get very good grades and I also have dyslexia so every thing was kind of hard in school and still is. my philosophy now a days is that everything dose NOT need to be perfect. sometimes you fail and sometimes you win! I just try to be as happy as I can :)

can I ask what crps stands for? I'm Swedish so excuse me for my bad English. :)

Aug 16, 2014 5:24 AM

Crps stands for Complex Regional Pain Syndrome. It cause you to always be in pain, specifically in your arms and legs although it can be other places. they pain can be burning, stabbing, sharp and leave tingling feelings. Some days are better then others so the pain level really depends on how your body wants to treat you on the day. although saying that, I can't remember what it feels like to not be in pain.

That's what I'm trying to do now, come to terms with the whole 'not everything needs to be perfect.'
it's so nice speaking with somebody who understands.

Can I ask what you are now studying? Also you English is excellent, no need to apologise. I'm Australian.

I think I might start playing around with my diet to see if that helps, any slight reduction in pain is better at none.

Aug 16, 2014 11:13 AM

I feel the same. so nice to talk to someone that is going though the same that I did and do.

I to don't know the feeling of a Body without pain.

from 1 September I'm gonna study sustainable comunity.

i would like to talk Some more. :)

Aug 16, 2014 4:58 PM

yes I would love to talk some more. maybe email?? my address is abbey.page@yahoo.com.au :)

Aug 16, 2014 7:30 PM

I'm 27 and also don't remember what it's like to not be in pain. it's always been there in one form or another, and through my 20's has only gotten worse and more widespread and persistent. my only chronic pain diagnosis currently is Chronic Migraine, but I'm seeing a rheumatologist for the first time next week that I'm hoping will help me figure out what's wrong with me.

Aug 18, 2014 4:01 AM

That sounds good. My experience with rheumatologist is pretty bad. But I'm sure I just meet the wrong person or doctor. For me it was really important to get the right diagnose. That has helped me a lot!

Aug 18, 2014 4:21 PM

i heard people that are in constant pain are always active to ignore the pain since adrenaline acts like a sort of painkiller in the body hope that somehow helps

Nov 04, 2014 8:41 PM

have had constant pain for a few years. I was diagnosed with rsd. it limits alot of the things I can do. i have lost alot of friends because of it and I have to turn down alot of things that I used to love to do because they now cause me more pain. it sucks

Nov 10, 2014 2:00 PM

I'm 17 now and had transverse myelitis about 5 years ago, left with nerve damage that causes severe nerve pain. Sometimes it gets so bad that I think it would be better to just die. My joints also take a lot of impact becaus I walk unbalanced. My parents don't believe that I'm in pain all the time and I was addicted to schedule 6 painkillers so I'm not allowed to take anything anymore... pain has become a part of my life and I've learnt to deal with it, but some days are worse than others!

Nov 12, 2014 9:03 AM

26 with undiagnosed chronic pain here. Well,the doc knows I'm in pain everywhere/ all the time, just not why. Currently on fibro meds but not much relief from those unfortunately. On a waiting list to see pain clinic.

Nov 12, 2014 9:25 AM

26 diagnosed with fibromyalgia. it's just been escalating and getting more painful over the past 6-7 years. I take the meds, I don't want to. it's fucking up my insides. I take a lot of codeine and tramadol but I it takes special care and time to work on non-pill healing. natural healing. don't take lyrica. what's weird is my psychiatrist put me on cymbalta- helps with pain, anxiety and depression. I've tried everything and it DOES lower my pain. I have PTSD, it's helping to replace my codeine and Klonopin and everything. chronic pain sucks, I'm a female welder and I'm basically screwed for work but keep your hopes up. email me sometime if you have any questions cause we're the and age, gender and diagnosis. it's good to problem solve and talk about meds with ppl just like you. it took years to get diagnosed. if people in your life don't understands our pain, I know why. chronic pain ppl like us can burn ourselves on the same stove as a regular person but our pain will last longer and come on stronger. healthy pain free ppl WILL NOT EVER FULLY UNDERSTAND. sad but true. amandaswim@ymail.com

Nov 13, 2014 9:41 PM

I am 27 with osteoarthritis and hypermobility. I see a pain specialist and manage well. socializing young is tricky.

I also use a cane daily and have a painful wrist implant from bone surgery.

I'm pretty happy with my life, when I'm not in pain! I'm a novelist and I do stay at home frequently, I avoid walking, standing in line, and dancing. I'm at a good weight and exercise frequently with tai chi, ab exercises, and light weights. I invite friends over instead of going t their houses so I can easily be comfortable and access medications. I bought a hot tub so I could do something social and therapeutic at the same time. before that I used to go with my friends to spas, etc.

email me if you like. derridaslut@yahoo.com. :)

Nov 14, 2014 2:04 PM

I was writing my physics final exam today. The pain in the whole left side of my body was unbearable. No one understands why my answersheet was full of tears. I didn't want to cry but I was so nauseous and I wasn't allowed to drink any pain medication or go to the bathroom to throw up... no one will ever get it!!

Nov 15, 2014 8:20 PM

I am 13yrs old and am undergoing surgery this weekend to get a spinal fusion. I have been in continuous pain for about... Mehhhh..... My whole life also having to be a pincushion since I was 2yrs being a diabetic and all. Usually I can ignore it but when I am asked on a scale of 10 it's usually a 9... But only because I am focusing on it so yes I do understand what you went through

Nov 15, 2014 9:22 PM

I hope all turns out ok for your Punkmoongoodness

Nov 16, 2014 6:54 PM

let us know how it goes punk

Nov 26, 2014 3:23 AM

I am 24 and have had chronic pain from JRA, Ankylosing spondylitis, and sjogren's syndrome since I was 10 yesrs old.

May 20, 2015 12:00 PM

I'm 33 with AS, but have been having severe chronic pain since my early 20s.

May 23, 2015 11:57 AM

I'm 16 and have an unknown and very complex condition since a car accident (05/08/2013). I have been suffering since I was 14 and it looks like this is life long

Jun 02, 2015 11:22 AM

I'm 22. And, I''ve had migraine headaches since, I was a little baby.

Jun 02, 2015 7:15 PM

I am 22 with fibromyalgia and other possible issues going on. I've had health issues for my entire life. Just wish normal people would understand.

Jun 04, 2015 6:31 PM

Oh, I felt the same way when I was little. I understand

Jun 14, 2015 6:08 PM

I'm 26 and have chronic Migraine and cervical degenerative disc disease. My migraines began at age 18 and have crescendoed and fluctuated since. It has made getting through the most difficult times of life nearly impossible to trudge through. University, jobs, social and romantic lives all have been continuously failing. Being young with chronic pain that is not visible is a major curse. If you don't have visible disability and "look just fine!", there will be no help from family, friends, and most importantly, doctors. Years go by with deteriorating health and it will always be imaginary to others. I'll never give up seeking help, and I know things could be worse, but I wish I could have a semi-understood, accepted illness.

Jan 14, 2016 3:13 AM

You have no idea how many times I cracked it at doctors, teachers, students, CentreLink staff, phsyos, rehab hospitals/programs, and random people online simply because they claim I'm too young to be so sick. I am 22 at the moment but my pain and migraines started in Feb 2009. Recently I was told by a rehab hospital that I'm too young to need mobility aids. I no longer leave the house because my pain is so bad my legs often get so weak I almost fall down. It sucks and it is damn near discrimination.

Jan 14, 2016 6:22 AM

Good afternoon from the UK. I really feel for you. I've been suffering with Fibromyalgia for years, without a diagnosis, but has now become intolerable due to degenerative discs, tears and bulging discs in my spine. I often need a stick to support me when walking, I picked mine up from a charity shop. If you need them, I would look on line and order some, just better to measure up really as you don't want one which is too short. Also, quite often people don't hand in their crutches back to the hospital. Perhaps put a plea out and see if anyone has some for you to try. I've been told to keep exercising, which is easier said than done. I really pay for it for several days of pain if I exert myself, but I shall keep doing it. I've just bought some NORDIK WALKING STICKS, which you can adjust to your height, you can buy ones with shock absorbers which I have. These were fantastic/ I don't do the pace which is expected,but it really helped me to get out and walk a bit further. Just having that support really helps.

Jan 14, 2016 11:58 AM

I am sorry to hear about your situation. I completely understand how you feel about others thinking your pain is imaginary. A lot of times my family suggest that is mind over matter. They are disappointed that I did not snap back after having a real bad accident that left me on disability. They didn't even recognize that disabilty is hard to get and I got it in six months. But they thought it was me. Don't you wish that you can just transfer you pain to them for like only thirty second. You love them and don't want them to have the same thing. But if they can just feel it for thirty seconds to a minute, maybe they would be more compassionate. I hope your situation improves physically and you can find a way to get some of your pain under control my best wishes to you.

Jan 14, 2016 12:28 PM

I've had my pain since I was 11, and now I'm 18. There's so many young people with chronic pain I've come to realize

Jan 14, 2016 10:52 PM

I am 28 yrs old I've had pain since I was 9 at the oldest, I was diagnosed with fibromyalgia at 10 as well as severe scoliosis. Many people have chronic pain, I really hope you're isn't degenerative. Rheumatoid arthritis running in my family, but it's not detectable with blood tests, so I have to wait until the damage shows on x-rays which will probably be in my mid-to-late thirties. Until then I have to beg and plead to get what little care I can.

Aug 10, 2017 8:49 PM

At 14 I was diagnosed with Juvenile Idiopathic Arthritis. I'm 26 now and still struggle every day. You're not alone. I understand the lonelyness of feeling like no one understands. Normal people take their pain free bodies for granted. It's frustrating. All the best to all in this situation

Aug 11, 2017 3:48 AM

I'm 24 now, 25 in November. I've had severe chronic low back pain since I was 16 and nobody believed it until a few years ago. Thought I was just being dramatic. Pain is now all over my body but centralized and most painful in my lower lumbar. It sucks, I'm tired of the comments about how I'm too young to know what "real" pain is or that I have such pain at all.

Aug 11, 2017 5:48 AM

I'm 26 and have severe chronic pain. I can't walk for long without resulting in many days of suffering. I can't remember when the pain started. It has drastically gotten worse in the past year, but before that I thought constantly being in pain was just part of the normal daily grind. That changed when I casually whined about it to my fiancé, asking if he knew the feeling when you just can't get your shoulder back in it's socket and it hurts all day. He looked at me like I had three heads and said, "no, I'm taking you to the doctor." He's been my greatest ally, fighting doctors when I don't have the energy to argue.

I'm finally seeing a pcp that listens, though we're having trouble finding treatment for the pain. I see a specialist in September.

Aug 13, 2017 4:13 PM

I'm 19 and have been dealing with chronic pain from lordosis and unknown joint pain for the past 6 years or so.. I'm still trying to figure out what exactly is wrong with me but other than that, I'm living my life day by day

Aug 14, 2017 2:22 PM

I'm 21 and have suffered from chronic pain for 5 years. It's still undiagnosed

Aug 16, 2017 9:53 AM

I started getting migraines when I was 6. Fibromyalgia diagnosed when I was 24. Severe TMJ and Trigeminal neuralgia diagnosed when I was 30. Occipital neuralgia diagnosed when I was 43. I’m 44 now. Chronic pain has been with me a long time. You’re not alone. I’m not going to say it gets easier, it does not. You just learn how to cope better from all the challenges chronic pain causes.

Aug 16, 2017 9:59 AM

I'm sixteen and tore two thing in my hip when I was fifteen and was in a ton of pain. Now three months after surgery I am still in a ton of pain because I fell and dislocated my hip. And the worst part is the doctor won't give me any pain meds to help with my pain

Aug 16, 2017 11:20 AM

I'm going to be 22 next week and ive been in pain since i turned 18 after a 3 concussion. I have ptsd due to how life changing it was from a college kid still living at home and I was in the best shape. It took one fall and my whole life was gone.... I feel like I died that day. Has any one else felt like that? If so any advice ? Its only been 4 years and I have so many random dignoises that even I am confused. No onw has answers. I did some college still working on it. I got married and we hsve two amazing dogs. So i should be happy right.... Instead I'm suicidal a lot and depressed I feel more and more useless every day. I'm gaining weight which was never a problem for me I was an athlete I got my anger out by running and now I can barely walk without getting dizzy. I see a counselor. I take the dumb meds. I try to participate socially I work occasionally. But moneys tight and I feel like its my fault cause of medical bills. My parents keep thinking all be there little girl again that it will go away... They can't imagine it not going away. Ive accepted it not going away... They treated me like a child to the point I had to ignore them for 3 months were trying to work it out but again they dont get that the person who they new died that day... How do I tell them that?
Sorry for the vent just needed some support and its hard when your young people tell you its what being young is.... They dont get that this is different... Then going of to college looking friends... You loose people because they cant accept or handle your pain. My favorite thing is my parents saying its hard for them to not be able to help me. Ok I understsnd that but they act like there the ones with the daily pain... Any ways its hard and you have to have close friends or family that understand of a support group in your city you can go to.

Aug 16, 2017 6:41 PM

Lauralei, I completely understand what your going through. I got injured in dance when I was 16, I'm 21 now and it's still undiagnosed. I used to dance to get out my anger and anxiety and when I got injured I didn't know what to do. I spent a long time thinking it was just an injury and that it would get better but the pain spread and it became chronic pain. I lost a lot of friends from chronic pain and to this day my family dosent understand. Until a few months ago my mom even thought this was in my head. It wasn't until they did am ultra sound on my spine that she fully believed me. She dosent help with medical bills anymore because she "dosent want to be responsible for me anymore" and it's really stressful on me, my medical bills just keep stacking up. I know what it feels like to just want everything to be over and my advice is try to find a therapist who specializes in chronic pain if you can, if anything positive at all has come out of your pain remind yourself of it. For example I started traveling more since I got injured and I appreciate when I can do things more than most people my age. Also try to find something non active that you enjoy( this one is hard for me) I still haven't found anything that I enjoy the same way as dance but I refuse to stop looking. I really hope things get better soon for you.
Stay strong and sending you gentle hugs

Sep 21, 2017 4:16 AM

Heya, I'm 16 going on to 17 and have had cps since I was 13 so I understand how u feel being young while feeling so old

Sep 21, 2017 1:38 PM

I'm 19 but have been in pain since I was 10. I have been diagnosed with Migraines, Herniated T11-T12 disc, Degenerative Disc Disease, Accessory Navicular Bone and Tethered Spinal cord. Doctors don't know why my knees, ankles, hips and back constantly hurt. But I'm 99% sure I have Juvenile Enthetisis Related Arthritis.

Sep 21, 2017 3:16 PM

I'm 14 had chronic pain since I was 12 I think. ♥️

Sep 21, 2017 11:32 PM

I am 35 and my crps was diagnosed when I was 27. I have tried everything there is to try regarding medications, physical therapy, mental therapy, and the SCS stimulator. The meds keep my pain to a tolerable level about 40 percent of the time and unfortunately no other options helped. I did just do a trial for the DRG stimulator (dorsal root ganglion) and it was awesome! Overall it took 80-90 percent of my pain away. The permanent one should be put in this month. If you haven't heard of it and you have crps then talk to your pain Dr about it. Studies show that it has been very successful with patients who suffer from crps. My pain is in my right leg only from an injury that didn't heal. My motor nerve in that leg is constantly misfiring and causing a ton of pain. Some days I just lie in bed and cry and pray because the pain is too much. I also us a cream called My Pain Away Fibro Cream. It is also for neuropathy pain. It helps calm the flares down a bit and can usually get me to my next pain pill. Also talking to a therapist who deals with chronic pain patients can help. They teach you brain exercises to help block the pain. After I get the DRG stimulator my life is going to change and I have the possibility of actually being me again. Right now my pain rules me and I can't wait to rule over it. Best of luck to everyone on here. I truly hope you get the tools to work through your pain. And if anyone has questions about the DRG stimulator please feel free to ask.

Sep 26, 2017 3:55 PM

I have been in pain since I was 15. I am now 21 and I work at a retail store that's popular for a lot of middle-aged to older women. I can't tell you how many times a day I've heard you're too young to be in pain. When I was 15 I injured myself and ballet class. I used to dance basically seven days a week of all types of dance. That's basically where all the pain started and it's only gotten worse since I got in a car accident. My family used to tell me that I was doing it for attention or that I was being a big baby. My parents would refuse to take me to doctors so I've only been to see doctors the past few years and most of the time they just gave me painkillers and sent me on my way. I have not found a single pain killer that work for me or a single medicine for fibromyalgia that works for me or anything that'll help me sleep and I'm young and don't have any money. I am young living on my own and can't afford any medicines or alternative medicines. I feel like that's something I've noticed a lot of people who suffer from chronic pain don't understand because they are older. I'm suffering and I have no money to do anything about it.

Sep 26, 2017 5:06 PM

I totally understand spidermanrosie I'm 22 luckily I have a husband to pay the bills and make sure we have medical insurance. I'm guessing your parents didn't allow you to stay on till your 26.. I'm sorry nothing has worked. I have chronic headaches that haven't gone away for 5 years. Their 24/7 so I understand no pain killers workong and I haye when people tell you. Your to young for pain or you dont know what real pain is drives me insane. My dad always uses how hard it is for him what I'm going through he makes it seem like a lot of pain for him...

Sep 26, 2017 6:05 PM

Thank you for sharing. I have health insurancw but i still cant afford to pay $80 co-pay a month for lyrica like my doctor wants to put me on. I went to a chiropractor which helped but i cant afford the $69 a month for that. I do not have a good relationship with my family so asking for financial help is out of the question.

Oct 02, 2017 8:45 PM

Ya I understand that my parents are like that too... So are my husbands parents.

Oct 06, 2017 2:10 PM

I'm 18, a freshman in college, and have had chronic pain as long as I've been alive. I have Ehlers Danlos Syndrome, among other conditions. I used to walk mostly without any mobility aids other than AFO inserts in my shoes, but lately I've been using my cane far more frequently than not. I've had more than a few encounters with senior citizens who somehow thought I was mocking them by using canes and walkers.

Oct 06, 2017 2:19 PM

I have state Medicaid in MN, where I'm a resident, and I never realized how much I took it for granted until I started college in IL. I have to get my medications mailed to me because I can't afford the copays here, and while my family's Federal Employee Health Benefits plan (one of my parents is a postal worker) does give me coverage in Chicagoland, it doesn't bring down copays.

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