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Zoo Day!

Mar 31, 2015 6:19 PM

Went to the zoo with the family today. It was nice. I'm going to soak in the tub tonight and hopefully not wake up too sore.
My leg weakness/gait disturbance returned after walking around for a couple hours. Tell me that doesn't sound like an MS exasperation.

Mar 31, 2015 6:25 PM

Aliya, that's great that you could go. I want to go with my grandkids, but need my breathing to improve more first. Yes, it does sound like possible MS. Keeping you in my prayers. I have my lumbar puncture tomorrow and I dread it.

Mar 31, 2015 6:38 PM

Will be thinking about you Flappyslady! I hope you get results quickly too.

Mar 31, 2015 6:49 PM

Thanks, me too. But the doc said even if its negative he's thinking of sending me to a MS facility for more tests. I'm trying to do research on other things it could be. But we all know what foggy brain does to researching... Lol 🙏🌼

Mar 31, 2015 7:31 PM

Yeah. I understand. I'm out of ideas for me. So is my very intelligent PCP. I am not convinced I don't have MS but it's just going to be a waiting game. In the mean time it's just fibromyalgia. My quality of sleep is declining rapidly and my pain rising. It's only been CONSTANT pain since last September. Before that it was only seasonal and weather changes and stiff joints. For around six years.

Mar 31, 2015 7:42 PM

My neurologist said sometimes it takes years for enough signs & symptoms to manifest to get diagnosed.

Mar 31, 2015 8:49 PM

Great to hear about the zoo trip, I bet that was fun!! Best wishes for answers and healing. Sending the mojo Flappys for your procedure tomorrow...🌺

Mar 31, 2015 9:25 PM

Thanks Oregon. Hope everyone has a peaceful night. Its storming here. My new dog needed to go potty, and the rain didnt bother him. Neither did the lightening...he just cocked his head sideways as if saying, "what was that?" Lol 🙏🌼 Goodnight all 💤💤

Mar 31, 2015 11:43 PM

Laying in bed. My legs are numb and burning. Yes. Both. Not sure I'll sleep tonight.

Apr 01, 2015 12:00 AM

And my goodness I am dizzy. As usual at night (due to gabapentin.). I just had to tend to my baby so I crawled knowing I shouldn't try to walk. Still fell over.

Apr 01, 2015 1:48 AM

Aliya that's great about the zoo. The burning feet and numbness in your feet and legs and then crawling to take care of my babies and still fell. The Fibro could be getting worse.

Apr 01, 2015 1:51 AM

Oops hit the wrong button. The crawling is a smart move, and not so far to fall.

Apr 01, 2015 5:23 AM

Aliya, maybe you should get a lightweight wheelchair to use. Getting back up, if I get on the floor, is extremely difficult for me. I had to get the dogs ball from under the couch, and when I finally got on my feet and went to straighten up, I got both dizzy & nauseated. Rather than expend your energy getting back up, and not risk falling, the wheelchair could help you get to the baby faster and easier. My husband and I are trying to figure out how to (minimally $) widen doorways and the hall, in the event I need a wheelchair

Apr 01, 2015 6:20 AM

Most of the time my husband gets up. I just hate waking him up when I am already awake. I'm pretty fit still. I do yoga, walk to work, etc. and getting up off the floor isn't really a problem. I just hate the drug induced dizziness every night. My doctor has lowered my dose four times but I get dizzy easily to start with.
My legs felt like hollow logs, heavy but empty with the bark burning with fire that doesn't burn anything up. Very strange. Certainly due to over use I think.

Apr 01, 2015 12:58 PM

You know, I told my husband I'm having trouble walking to the bathroom at night; feel dizzy & off balance. I bet its the gabapentin! Darn why didn't it click with me last night! Lol fog-brain in the swampy marsh...that's why! 😉

Apr 01, 2015 3:56 PM

Aliya I hope that your legs are feeling better today. I belive that when I'm on my legs too much that's what is causing my legs and feet to feel numb and burning under my feet. My Neuro recently raised my Gabapentin from 600-800 every 4 hrs. I have noticed having some dizziness and it seems like the Fibro fog is happening more often than before. I am sorry if I am not making any sense today I have been at the hospital with my daughter since yesterday at 2 pm. Hopefully we get to go home this evening after they run the nb. test on her 24 hr urine.

Apr 01, 2015 4:47 PM

Aliya Flappsy had a good idea about getting a small wheelchair for you to use. You can probably get one at Walmart or at Walgreens. I don't know how much they are

Apr 01, 2015 5:06 PM

Being young (30) does have it's advantages even in fibromyalgia.

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